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~ Living Life as I see it… or Don't

Life Unscripted

Monthly Archives: March 2018

Book review: “Carry On” by Lisa Fenn

31 Saturday Mar 2018

Posted by blindbeader in Book reviews, Nonfiction

≈ 2 Comments

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I first heard of this book during the lead-up to the 2016 Paralympic Games in Rio. Fellow blogger Beth Finke caught an interview with the author on NPR and used it as a launching point to discuss the wonder and beauty of cross-disability assistance. I know I’m late, but I decided to read this book during the leadup to the 2018 Paralympics. I was hooked!

Publisher’s Summary

In the spirit of The Blind Side and Friday Night Lights comes a tender and profoundly moving memoir about an ESPN producer’s unexpected relationship with two disabled wrestlers from inner city Cleveland and how these bonds – blossoming, ultimately, into a most unorthodox family – would transform their lives.

When award-winning ESPN producer Lisa Fenn returned to her hometown for a story about two wrestlers at one of Cleveland’s toughest public high schools, she had no idea that the trip would change her life. Both young men were disadvantaged students with significant physical disabilities. Dartanyon Crockett was legally blind as a result of Leber’s disease; Leroy Sutton lost both his legs at 11, when he was run over by a train. Brought together by wrestling, they had developed a brother-like bond as they worked to overcome their disabilities.

After forming a profound connection with Dartanyon and Leroy, Fenn realized she couldn’t just walk away when filming ended; these boys had had to overcome the odds too many times. Instead Fenn dedicated herself to ensuring their success long after the reporting was finished and the story aired – and an unlikely family of three was formed.

The years ahead would be fraught with complex challenges, but Fenn stayed with the boys every step of the way – teaching them essential life skills, helping them heal old wounds and traumatic pasts, and providing the first steady and consistent support system they’d ever had.

This powerful memoir is one of love, hope, faith, and strength – a story about an unusual family and the courage to carry on, even in the most extraordinary circumstances.

Lisa’s Story

This story is deeply personal. While it is interwoven with strong and sharp threads of Leroy’s and Dartanyon’s stories – and those of other key figures – this is Lisa’s story. From early childhood memories to blustering and fumbling her way to a dream job to high school wrestling matches and beyond, We get to know Lisa as a warm-hearted woman who yearns for a family. And she definitely gets her wish!

We’re introduced to athletes, to coaches, to parents and siblings. We laugh, we cry, and we hope and despair. But, make no mistake, this is Lisa’s story.

Sports – The Great Equalizer?

I’m not huge into wrestling, but Lisa’s writing puts the reader in school gyms, locker rooms, and world-class sports venues. You can definitely feel her respect for athletes in their own right, though there’s a strong undertone (sometimes voiced by coaches and observers and sometimes by Lisa herself) that athletes with disabilities are not talented in their own right… they’re talented “for a legless kid” (as someone referred to Leroy). The reactions to both young men – men of colour, living in poverty, and with disabilities – are almost exclusively related to their disabilities (as many of their peers are both people of colour and living in poverty); some are astounded that they can wrestle at all and use them as “inspirations”, others don’t want to challenge them out of fear or ignorance, and still others give them the respect of laying it all on the mat. And yet, it’s clear that wrestling – and Lisa and ESPN’s exposure – gave both Leroy and Dartanyon opportunities that they otherwise wouldn’t have had.

Disability as Inspiration or Tragedy

As much as I enjoyed this compelling read overall, I had a hard time escaping the prevailing theme that disability was something to be pitied or inspirationalized. In Lisa’s career as a sports editor, she interviewed athletes from all walks of life, including a hockey player who – years before the interview – became injured and paralyzed just seconds after stepping onto the ice during his first major game (you could almost hear the sad cellos playing in the background). Leroy and Dartanyon’s wrestling coach contacted the local newspaper to write a story about his two disabled wrestlers (clearly without consulting them); Lisa was unable to explain why she thought it was a story that needed national attention, but to her it was, so she dropped everything to fly back to her home city and interview these kids. When the resulting ESPN story aired, the resulting letters and responses left this reader with the distinct feeling that Leroy and Dartanyon were meant to be viewed as recipients of generosity and catalysts for people to look outside themselves, rather than talented athletes in their own rights.

And Yet…

No one can ignore the confluence of race, poverty, and disability, and how Leroy and Dartanyon’s families – neither of which were what many would consider “stable” – shaped their high school and college/university experiences. Dartanyon, in particular, frequently refused to be “pitied” as a blind guy, even though he could’ve made use of adapted services, because he didn’t want anyone to treat him differently. Leroy didn’t have the luxury of being able to blend in, but it is clear that his school and training environments are not well-equipped for many students (lack of uniforms and sports equipment) and definitely not set up with wheelchair-accessible buses or classrooms. It’s hard to look away from the reality that many cards are stacked against these young men’s lives and journeys. Lisa is tireless in her desire to provide for Leroy and Dartanyon, even as her adopted and biological family with her husband keeps growing. It’s heart-warming and frustrating and an important conversation – nature and nurture and empathy and personal responsibility. It made this reader uncomfortable, and maybe that’s a good thing.

Conclusion

This book is part memoir, part sports journey, part family history. There are some deeply uncomfortable mentions of ableism, racism, and inspiration porn (based on the depiction of the ESPN piece, “Carry On”, this reader has no desire to see it). And yet, this autobiography is compulsively readable, uplifting in places, and thought-provoking. It’s definitely worth the read.

3.5/5 stars.

I’m a Real Runner Now!

19 Monday Mar 2018

Posted by blindbeader in blindness

≈ 2 Comments

Tags

guide dog, running, stress, winter

Today is March 19. It’s the last day of winter, which has felt like it’s had a hard time making up its mediorological mind. We’ve had weeks of frigidly cold temperatures, several large dumps of snow, and weeks where the snow melts and it feels like spring is just around the corner.

Now that spring is actually around the corner – according to the calendar, at least – I can claim something I’ve wanted to for years.

I’m a real, honest to goodness, winter runner!

What made it all happen? Was it my desire – voiced every winter when I stopped running as soon as the ground froze – to run year-round? Or when I started contacting running groups to network with other runners? Was it the purchase of layers of clothes or spikes for my shoes? Was it reading the facebook statuses of friends who ran in sub-zero temperatures and desperately wanting to join them?

It was all of these things and more.

For years, I’ve run with my guide dog during the spring and summer and autumn months. For years, it’s been an incredible journey. For years, it relieved my stress and my pain – from a sudden job loss to months of job-hunting to the death of a beloved pet. One day this past January, I was waiting for a taxi (which you do in -35C) and noticed a runner on the path. I wanted to stop them and ask what they used for gear, but I was cold and tired and didn’t want to interrupt their pace. Besides, I’d already purchased pants, a face mask, shoe spikes, and a bright yellow jacket that makes me visible for blocks; I think I wanted the connection more than I wanted to swap gear stories. I’ve been unable to connect with local running groups because of their location (too far) and their speed (FAR too fast). Unfortunately, I think for me, at least right now, winter running is a solitary pursuit. I want to continually challenge my body, to fly with Jenny down the streets of my neighborhood, to feel the burn in my legs and my lungs as I pushed myself to my limits. Even on my own, I wanted the fair-weather journey to continue. I’ve been sidelined by blizzards, illness, and injury, but those can no longer stop me.

I am a winter runner!

I realized I was a winter runner just yesterday. It wasn’t my fastest winter run (a 5K in February) nor the coldest (a -20C run in January that presented tiny ice crystals on my eyebrows), but I think it was my favourite. My shoe spikes cut through the layers of ice and kept me upright. My legs burned as they forced my feet to shove aside the wet, slushy snow. My toes got soaked when the ice cracked beneath my stride and unearthed an inches-deep and very wide puddle. It was a sunny late-morning that would later give way to clouds and more snow flurries, and I felt like the sun had come out just for me, to cheer me on and push me forward. I came home with freezing toes, burning legs, and pants that were soaked halfway to my knees. Jenny shook droplets of water from her hips to her toes, ran upstairs and brought down her tug rope.

I wanted more.

So, now that I have proven to myself that Jenny and I CAN brave the cold… I refuse to allow myself any more excuses. We’re getting out there, hitting the road, and nothing can stop us!

The Intrepid Journey 2018: Back to the Drawing Board

03 Saturday Mar 2018

Posted by blindbeader in The Intrepid Journey 2018

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Tags

Greyhound, Helena, Missoula, plan B, road trip, travel

Well, not quite… but mostly.

 

Since my previous post about my three bus cancellations, I’ve been waiting… and waiting… and waiting. In addition to the three tickets I was alerted had been changed canceled, further research has shown me that one more ticket had been altered, making my accommodations in Helena nearly unusable. I was able to get that ticket refunded as well, but that leaves me in a position of having multiple accommodations and no safe way to get from one to another, unless I book alternate arrangements and/or change my accommodation bookings.

I’ve booked one flight – the one to get me to Seattle – and one bus ticket that appears to have been unaffected by route and schedule changes. Beyond that, I’ve been doing mental gymnastics trying to figure out whether to keep my existing schedule and hope transportation figures itself out or making changes, forfeiting one unaffected bus ticket and hoping things don’t change further.

I am tired.

I’ve also decided to create a crowdfunding page. Many readers have read my Epic Road Trip of Awesome series and expressed their enjoyment of it. Because I plan on blogging about The Intrepid Journey, I’m asking faithful readers to consider supporting this trip to help make it the best trip it can be. 🙂

Please consider supporting this trip and sharing the crowdfunding page (even sharing can help out!)

I’ve got a generally clean slate, and that is both exciting and aggravating.

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