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Life Unscripted

~ Living Life as I see it… or Don't

Life Unscripted

Monthly Archives: November 2014

Borrowed post: I Apologize For The “Inconvenience”

28 Friday Nov 2014

Posted by blindbeader in blindness

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Due to circumstances partially beyond my control – a visitor from out of town (planned), a freak winter blizzard (not planned) – a blog post of my own was not m ade today.  But my friend Meagan has, once again, hit the nail on the head.

 

I must preface this by saying that not everyone is like this, but even sometimes little things like heavy sighs or joking comments like “oh, sure” can make me read something into it that just isn’t there simply because the “inconvenience” factor has been so often thrown in my face.

 

But, for the most part, people are amazing… I remember this on a day that I am snug in my house, while my dog is curled up at my feet, and coffee is on and water is boiling for my friend’s tea.

 

I Apologize For The “Inconvenience”.

“Us” and “Them” – taken to extremes

20 Thursday Nov 2014

Posted by blindbeader in Uncategorized

≈ 2 Comments

I don’t know what it is, but lately I have seen a great increase in the mentality of “us” v. “them” – whatever form that happens to take.  There have been articles printed separating nationality, race, religion, political affiliation (if any), sexual orientation, marital status, number of children (if any), and on and on the list goes.  While by birth, preference, or biology, I fall into any number of similar or opposing camps, I can decide how I choose to treat those who are different from myself, starting with the one group of people who are very much like me – those who are visually impaired.

This observation – by pure coincidence – comes on the leadup to National Bullying Awareness Week.  Perhaps also by coincidence, I have stumbled across articles that have detailed some of the double standards placed on those who have low vision by those who have none and vice versa. I must confess, however, that I am not immune to this “us” v. “them” mentality myself.

I have started reading biographies of people who are blind or have low vision, and I find myself frustrated by the perceptions of blindness that pervade many of these pages, particularly by those with low vision.  I laughed out loud at Ryan Knighton’s antics in “Cockeyed“, but was embarrassed on behalf of other blind people when he detailed the week from hell at blind summer camp.  I loved Nicole C. Kear’s “Now I See You“, but again was slightly dismayed by her journey of denial due to her own perceptions of what other blind people were like.  Am I uncomfortable because I see myself or people I know in these pages?  Or is it closer to home?  Some of these writers are people with whom I should find kindred spirits, and yet I find myself jealous because some can see better than I can while – admittedly with a sense of humour – are detailing some of the worst stereotypes about people who will in all likelihood come alongside them when that precious vision is gone.

All of this is not to mention comments that I have seen (and occasionally made) about how sighted people “just don’t get it!”  My friend Gregg has best described the dichotomy of building bridges and doing our best, but he is completely right; we will never 100% bridge those gaps.

Molly Burke is probably one of the most well-known Canadians who has been personally affected by bullying.  She could choose to be angry at sighted people in general – how dare they insult her, taunt her, ridicule her? – but has chosen to spend her teenage years and young adulthood to bringing awareness to the effects of bullying.  On the flip side, those who get past the novelty stage of our blindness or visual impairment should likewise be commended – not for their charity (“Good for you for befriending the blind girl!”), but for their simple willingness to see us as people.

Are we all just so afraid of our differences?  Do we wrap ourselves up in righteous piety because WE have it harder than THEM?  How arrogant can we be?  While acknowledging these differences is not a bad thing and part of what makes our society so fascinating, we can’t wrap ourselves up in our differences at the exclusion of our shared humanity.  If we avoid lingo that is designed to inflame and enrage (ableist, racist, etc.), the more likely we are to all understand each other just a little bit better.

Let there be light! (well, sort of)

13 Thursday Nov 2014

Posted by blindbeader in Uncategorized

≈ 4 Comments

Many people assume that if you are blind and travel with a cane (or, in my case, an adorable guide dog), all you see is black.  This is actually not true, on many counts.  There are as many causes of visual impairment as there are blind or visually impaired people, and many have varying degrees of vision.

 

People I know who are totally blind often tell me that they see nothing – not black, just nothing.  Sure, technically, black is the absence of colour, but the truth is that black actually does have a form in the visual realm.

 

Personally, I have no vision in my left eye, but I don’t see black in it.  Since I have visual memory from higher vision as a child, I can tell you that, for the most part, I just see an absense of any colour – more of a bland gray, if you actually have to put a colour to it.  Also, I see a little light in the far left corner of that eye, not unlike a candle flame.  This is nearly constant, whether my eye is open or closed; thankfully it doesn’t affect my sleep!

 

My right eye is much more complex, because I had so many operations as a child.  I have enough vision to see light and dark, some sharply contrasting colours, etc., but everything I see is two-dimmensional.  I walk into a room and everything I see – people, furniture, my hands – look like flat pancakes.  So I could never confidently walk into a crowded hockey arena sans cane or guide dog and hope to safely find a seat without crawling over people simply because my visual perception is so skewed.

 

So why should you care?  Maybe you won’t, and that’s OK.  But I had a ten-second conversation with my boss this week that dumped my perception of myself and my eyeballs on its head: I am guilty of the very thing that I accuse others of doing, assuming that because my vision isn’t perfect, that it doesn’t exist.

 

I stepped into my boss’ office to follow up on an email I had written suggesting changes in spelling and grammar for a Word document he had sent me.  He thanked me, and said “That’s why I sent it to you; get another set of eyes on it.”  Without missing a beat, I replied, “Well, ears; my eyes don’t work!”  He paused for just a split second and said, “Yes, they do!”

 

I was so surprised I nearly dropped my coffee.  “What do you mean, my eyes work?  You know that I use JAWS to use a computer…”

 

He calmly told me, “Yeah, but you can walk into my office and know if it’s sunny when you look out the window; you get a bit blue if you don’t get outside during the daylight hours; you sometimes turn on lights if it’s dark and you’re the first person here.  So sure, your eyes don’t work perfectly, but they do ‘work.'”

 

What this perspective means for my life and my outlook, I just don’t know.  But I think, for the first time, I need to start looking at some of the double standards that I – and by extension others like me – have unknowingly put on myself.

Feeling Comfortably Uncomfortable

07 Friday Nov 2014

Posted by blindbeader in blindness

≈ 2 Comments

Being  blind (or visually impaired) seems to engender the kindness and politeness of the general public.  But would you be surprised to find that many things that the public view as kindness are actually awkward at best or offensive at worst to the recipient?  I am not saying this to be ungrateful, vicious or mean; simply to point out that we receive some of the most patronizing – or the most gracious – acts and comments that you can imagine.

 

Let’s start with the word “blind”, which seems to have fallen out of favor due to avoiding hurt feelings.  The term “blind” seems to offend some people, as though I will break into tears if someone acknowledges my lack of sight.  I live with it every day, so am quite OK with someone else making note of it by simply calling it what it is.  But in their effort to avoid using the dreaded “b” word, strangers have stumbled over “sightless,” “visually challenged”, “sight impaired,” and more awkward or inaccurate descriptors.  I know a couple of totally blind people who take the term “blind” literally, so they will very rudely point out that they are not partially sighted, they are BLIND; conversely, I know some that have some vision who seem to be offended that someone dared to use the “b” word to them.  No wonder people try so hard to be inoffensive that they stumble all over themselves!  FYI, just speak naturally to me or anyone else who can’t see; a very very very very small minority of us get hung up on the language, or get offended at words like “blind,” “see” and “look.”

 

The general public seems to have a fascination with blindness and how we live our lives, so much so that we get asked quite rude questions.  Perhaps this is a way of making us feel like we belong, but in fact the opposite is true.  Several years ago, I was shopping for produce, and an employee was offering me assistance around the store (it takes less time and is more hygienic than groping all the produce to identify it).  We were on our way from the sweet potatoes toward the cucumbers when the employee – not unkindly, but rather suddenly – asked, “So, were you blinded in an accident?”  I was so surprised that I honestly couldn’t figure out how to best answer his question whilst picking my jaw up off the floor.  I assure you that questions regarding the cause of my blindness are not uncommon occurrences; I keep wanting to make up this terribly tragic story about a nasty chemical explosion that also gave me super powers, but I couldn’t do it with a straight face.

 

On the flip side, I often get told of advances in science that will restore sight (“Isn’t that awesome?”) or that I should get an operation so that my eyes will look normal (someone has actually told me this).  I suppose that since blindness is feared more than premature death, I suppose the general public assumes that anyone without sight would jump at these chances…. but I would not.  My life is too settled now to undergo such a risky procedure – and a risk is all it would be.

 

I have occasionally had well-meaning strangers shove money in my hand – this happened to my parents when I was a child, and only rarely to me personally as an adult.  I know that in some cultures the blind are unable to work, and in our own western culture the blind are woefully under- or unemployed.  Thankfully I do work full-time, and have not recently had someone put me in the awkward position of accepting a cash handout (though a while ago someone offered to pay for my lunch at a local diner, which I did accept).

 

But what happens when someone does something well-meaning and you have no way to decline and, frankly, you don’t wish to decline such an outrageous form of generosity?  I was faced with this several months ago when ten or twelve of us from our goalball team went out to eat for dinner after a practice.  We had ordered our food and drinks, and the staff was starting to bring our meals to the table, when the waitress came up to us and said that the gentleman at the table behind us wanted to pay for our meals, so our bill up to that point had been taken care of – appetizers, entrees, drinks, tip…  This was just so astounding to us – 10-12 visually impaired people (not all of whose visual impairment was obvious.  To this day I doubt I will ever forget it.  But I am not alone in receiving this kind of generous act; someone else put it better than I ever could, so I will let her speak for herself.

 

All this to say that I doubt we as blind – or visually impaired – people will completely eliminate the seeming awkwardness that surrounds our “otherness”.  But I think the more comfortable I am with myself, perhaps the more comfortable others will be around me.  But perhaps that has nothing to do with my blindness.  Perhaps it’s simply the way all people should try and live – with head high, saying things as they are but tempered with grace, a sense of humour, and the occasional funny story at the end of the day… chemical explosion, anyone?

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