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Life Unscripted

~ Living Life as I see it… or Don't

Life Unscripted

Monthly Archives: August 2016

Book Review: Touching the World

31 Wednesday Aug 2016

Posted by blindbeader in Book reviews, Nonfiction

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I rarely read books more than once. If I do, it’s because there’s so much material that I just know that I missed something the first time around, and I’m usually right. “Touching the World” by Cathy Birchall and Bernard Smith is one such rare occurrence.

About the book

Touching the World is the extraordinary story of Cathy Birchall, a blind woman, who set off with her companion Bernard Smith, to become the first blind person ever to circle the world on a motorbike, an 18 year old BMW R100. What transpired has become an inspirational worldwide story that challenges people to question their own self-imposed boundaries. From desolate and dangerous mountain roads, difficult border crossings and numerous mechanical breakdowns, to climbing Wayna Picchu (first ever blind woman to do so) and riding an elephant mounted from the front (via its trunk!) – not to mention a poignant visit to the Centre for Blind Women in Delhi where they talked to women abandoned by their husbands, and an (inadvertent) overnight stay in a Kosovan brothel – this book has it all, travel, adventure, triumph over adversity, and through it comes a real sense of just what it means to be blind. Their heart-warming writing reflects a vivid account of the world, often hilarious and always positive.

Blindness: both Ever-Present and Absent

This book is a traveler’s journey. It is in some ways about blindness but in others it’s about learning more about yourself and others than you ever thought possible. In many ways Cathy’s blindness elicits sympathy, while in others it opens the minds of those she encounters. I wonder if she would be treated differently had she been a local, or had her blindness been immediately obvious (as it’s indicated clearly that it’s not) or had she visited certain places alone. Her own views on blindness – about being as independent as possible – really resonated with me, though her partner guides her through public women’s washrooms, which I found incongruous and strange. A couple of passages where her hands are guided to chairs or wineglasses are viewed by her as “kindness” (possibly due to language barriers?), but may be considered as invasive to others. That being said, Cathy has an articulate way of responding to her blindness, describing how many blind people get things done, as well as her own viewpoints regarding education, employment and marriage for a blind person.

But it’s not just about that. One reviewer indicates that not enough was made of Cathy’s blindness in this book, that it didn’t encompass the journey as a whole… I tend to disagree. It was neither the focal point of this book, nor was it discounted. The journey was more about a lifelong dream of Bernard’s in which Cathy enthusiastically participated.

Traveling, Digging Deep, Swerving Into the Curves

I’ve got a thing for motorcycles. Riding around the world would probably never be my dream, but it’s fantastic that it has been done. Cathy and Bernard’s year around the world showed them – and, by extension, me – that people are really not so different after all. Maybe circumstances are different – one country’s residents struggle for employment while another can’t get enough food – but they found people (even in areas they were told not to attempt to ride) were warm-hearted, generous, and open to learn. From the security detail that trailed them most of the way through Pakistan, to the (sometimes helpful, sometimes not) border or Visa agents they encountered on their journey, to the hospitable Nepalese who gave them respite from the Indian roads that nearly destroyed them emotionally if not physically, they were looked after many steps of the way.

While they were overwhelmingly positive during many portions of their journey – even through mechanical breakdowns, government bureaucracy, and inadvertently spending nights in brothels – I would not agree that it’s “always`positive.” In fact, there were certain points – India comes to mind, but there are others – where both Cathy and Bernard were at their breaking point. The last two weeks saw them simply wanting to be going home – after zipping through small central American countries, then the heat of Mexico, and then having to book it eastward to make it home on time (thanks to American bureaucracy). You see them and their relationship, warts and all, and in this reader’s opinion made it a more well-rounded book.

Conclusion

If you’ve ever wondered about foreign countries – culture, food, living conditions – in some ways this book only scratches the surface. Blindness organizations were explored in many countries – guide dog training centers, schools, vocational training centres – but, again, it wasn’t necessarily the focal point of their journey. I enjoyed every minute of this book, but it left me hungry for more. Thankfully, the World Tour Web site has many bits of information about the trip and what happens next. My understanding is that Bernard has another – in many ways more difficult – book ahead of him, and while it will be without Cathy’s wry sense of humour, I think I’ll see traces of her in it.

Overall, “Touching the World” was both moving and poignant, with moments that delighted, frightened, and inspired me.

4.5/5 stars.

Schoolbooks and Slingshots: Education, Legislation, and the Mess In Between

26 Friday Aug 2016

Posted by blindbeader in blindness

≈ 1 Comment

Tags

access, advocacy, ambassadorship, autonomy, dignity, education, employment, legislation, respect

What does discrimination look like? Is it being told, flat out, that you can’t do this task or have this job or enter that building or raise a family? Is it using insulting words, raised voices, thrown objects? Or is it subtler? Is it the pervasive idea that our presence in and of itself – with minds or bodies that don’t function “correctly” – is unwanted?
More important than that, how can we combat it? Is education the best way to eliminate misconceptions? Or is confrontation more productive? Over the years I have believed that one or the other is appropriate, but I’ve done a lot of thinking recently… why is it assumed that the two are mutually exclusive?

Not long ago I found a couple of friends posting on Facebook a status that went something like this: “Maybe I’m the only blind person you know, and maybe you’re afraid to ask me questions. THIS is a safe place to ask any questions you have – big or small – about my life as a blind person.” It’s an interesting thought – something that I would consider doing on social media, for people who have already built up some form of a relationship with me. But I question the appropriateness of educating the general public… just because they are curious and don’t know how I live my life. It’s one thing for a prospective employer or university professor to ask questions about how the job gets done – but my life is my own, and I shouldn’t have to educate the passenger beside me on the bus how I cook, clean, live my life, just because they’re curious and are dying to know. If someone has the time and inclination to share this information, that’s absolutely acceptable. But not everyone wishes to do so, and should not feel judged by the disability community at large or by the general public for politely declining to answer what can be considered nosy, invasive questions when directed at a non-disabled person.
But what if someone says or does or asks something truly offensive? Is education appropriate? The answer is… yes and no. It does definitely depend on the situation – what was said, how it was said, and how willing the other party is to understand that what they said, did or asked was inappropriate or invasive. I recently had a really rough day, where someone I asked for directions talked over me as though I couldn’t talk for myself, an interviewer told me that my resume was just what she was looking for but she “just didn’t know if I could do the job”, and then a woman on the bus told me that I “looked so young and attractive” that she “never would’ve guessed I had any challenges.” With person number 1, I was admittedly abrupt and short, thanking him sincerely for his help but that I could take it from here and speak for myself (His response: “Really? You can?”) The job interviewer was much trickier, because I felt like I had to not only convince her that I COULD do that job, but also be polite in the face of that dreaded C word (“can’t“). When I was later advised the position had been given to another candidate, I requested more information about my interview itself and was able to explain why her comments and questions were unreasonable and inappropriate, and how it’s always best to presume competence; she thanked me for my feedback and promised to implement changes to her interview practices. The lady on the bus… I was so taken aback by her comment – that attractiveness, youth and disability couldn’t co-exist – that I thanked her for her compliment but told her that it was offensive, because disability is not just for the old and the unattractive. She thanked me for telling her and said she would choose her words more wisely in the future.
But not everyone is as willing to hear our answers, having their own ideas about our capabilities and the realities of our lives. More than once someone has made a statement of how sad my life must be, but when I try and explain, I effectively get told that I’m wrong – that I miss out on so many beautiful things. It’s frustrating on an emotional level, but when it comes to employment it becomes economically frustrating as well. So what do we do when others’ perceptions and ideas and design affects our ability to work, to study, to access facilities? We sometimes fight through legislation. Maybe it won’t change someone’s mind until they realize how serious it is that we’re denied job opportunities, academic pursuits, and the ability to move freely through cities, streets and businesses. I’ve never seen the picture of the “Capitol Crawl” – a public visual demand for passage of the Americans with Disabilities Act – but it’s an important image to keep in mind: access to some is not access for all, and until all citizens have access to the same products, services and facilities, a society is not truly free and equal. And even though not everything is a fight, it is important to band together as a stronger disability community – to support each other and the non-disabled who stand with us as we try and make a difference.
Sometimes it’s best to catch flies with honey rather than vinegar. But if you can’t catch them with honey because they just don’t care, vinegar is absolutely a valid option. It’s important to choose our battles wisely, to conduct ourselves with a strong will tempered by grace, wisdom and logic. Emotion, if channeled appropriately, can be powerful, but it can’t be the only way we respond to circumstance. And logic without personal experience is dry and boring and, frankly, no one wants to hear that either. Sometimes change is best accomplished through well-timed, well-tempered words; other times it means pushing back against ideas and thoughts and practices through personal or government advocacy. No one way is right or wrong for everyone, but it is important that whatever we do, however we combat discrimination and prejudice, that it improves life for everyone, not just one segment of our community.

It’s Been a Wild Ride!

17 Wednesday Aug 2016

Posted by blindbeader in Uncategorized

≈ 3 Comments

Tags

anniversaries, blogging, grattitude

This post is dedicated to you, my wonderful readers; without you and your reads, comments and shares, this blog would just be like spitting into the wind. I’d be nowhere without you – your support, encouragement, constructive criticism,and your discussion.

Two years ago, I started this blog with the unlikely first post entitled “Welcome to Blogville.” I had no idea of the readership this blog has received – more than friends and family, or friends and family OF friends and family… but from all over the world. People who can see, people who can’t, and everything in between. People with disabilities, people without, people whose kids have disabilities… You have read and shared posts like this or this or that over and over. I’ve written posts like these ones that had you either cheering in agreement or vehemently disagreeing with me – but you’ve always been generally respectful, even if you think I’m wrong, too harsh, or otherwise out to lunch.

My readers have joined me on a trip to New York city, been along for the bumpy ride of unemployment, and even had a little bit of fun with me. You’ve been interviewed for my Empowered series, discussed books I’ve written about, and encouraged me, my writing and my blog in a million other ways.

A thank you is not nearly enough for all this, but it’s what I can give, so a huge, heartfelt THANK YOU! It’s been a wild ride. Whether you’ve been with me since the beginning (like Meagan who encouraged me to do this in the first place) or are reading this as one of your introductory posts, please keep joining me on this journey called life. It’s constantly changing, almost never boring. It’s painful and wonderful and exciting, and while this life – my circumstance, decisions, viewpoint – is my own, it’s all the richer for having you in it.

A Burger with a Side of Discrimination, Please

05 Friday Aug 2016

Posted by blindbeader in blindness

≈ 7 Comments

Tags

access, advocacy, dignity, disability, discrimination, employment, perception, respect

Not long ago, I was visiting British Columbia, a province with a very well-publicized and shiny new Service Dogs Act. My trip was generally a positive one, until I attempted to enter one particular bar/restaurant that I had previously frequented. I’m not unfamiliar with being asked for ID to verify my age in such places, and even my (thankfully relatively) few access challenges with my guide dog have primarily been handled discretely and/or quickly. What I did not expect was to be demanded, loudly and publicly, for my guide dog’s paperwork… from across the bar. My dog was doing nothing inappropriate, was guiding me into the restaurant, her nails slightly struggling to gain purchase on the slippery floor. So… I was demanded – loudly and publicly – for paperwork that no one else in the restaurant was required to produce. Long story short, I realized that I didn’t have current ID with me (I had mistakenly packed an expired school-issued ID card), and I was asked to leave. When I told the employee she should consider discretion if she had to request paperwork from paying patrons, she acted so surprised that such a thing would be requested of her.
Without getting into the nitty-gritties, I contacted the BC government on this issue. They ended up responding to my complaint with an inaccessible PDF (one that was scanned as a picture, so no readable text for a screen reader), which said – basically – that since I didn’t have a piece of plastic (whether issued by the government or a guide/service dog program), a business was within their rights to refuse service. They did not address the humiliating and embarrassing experience of being demanded publicly for such information and then publicly being told to leave.
Where is the outrage outside of the service dog and/or blind community? Would anyone else be expected to accept this treatment?
Last week, a news story made the rounds about a teenager with a disability who was purposefully excluded from a relative’s wedding because of her disability. The support on sites like Reddit came in fast and furious, which is awesome… but it got me to thinking: Where is the support from the public when people with disabilities are turned down for jobs (whether stated or implied) because of their disability, forced to alter their academic pursuits or undergo additional testing, find it easier to obtain resources to assist in their death than aids to live life, are killed for simply being disabled?

There is open discrimination in the world – being told you won’t get a job because of your disability (yes, this happens). There is invisible discrimination where it’s implied by the subtext of a conversation or interaction that your presence, request, or concern is not wanted or valid (yes, this happens, too). There is violence against the disabled as can be evidenced by interactions with police, the murder in Japan last week, or by cultures who view disability as a curse on a family. While disability can have its own limitations (at this point, I won’t be driving a car anytime soon); but I believe that it’s not disability that holds us back as much as perceptions and demands of others. To some, not eating at that particular restaurant may be a “little thing”, and I suppose it’s true because we had other options. But what if we didn’t? Maybe that young girl loved her aunt and really wanted to be at her wedding for that special day, and she got slapped in the face because of a perception of what she could and couldn’t do. Judging by the amount of tense family gatherings I’ve witnessed and heard of, discrimination – even by a family member – is a pretty big deal. And how big a deal is open or invisible discrimination in the job hunt when it directly impacts one’s ability to make a living and contribute to a local, national or even global economy? And if we can’t access facilities like everyone else, attend family functions, obtain employment if we have the desired qualifications and skills, do we reach a tragic end because we just don’t belong? To quote a friend of mine, I’ve been gifted a double portion of stubborn. Maybe this will help me, maybe it will help others. It’s never “just about a restaurant” when you’re made to feel scrutinized for simply walking or rolling through the door. It’s never “just one day” when you get told that you, specifically, are not welcome at a celebration, but your whole family can come along now. It’s never “just one job” when you get told there’s no way you can do job tasks you’ve honed over years of practice and hard-won experience.

And it’s never “just one life” when you have to fight not only others’ perceptions, bureaucratic red tape, medical concerns, and discrimination… but yourself underneath it all. Sometimes being who we are is a radical act of defiance.

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