“What a shame, you’re so pretty!”
Thus begins this article by the Huffington Post, bringing awareness to a social media campaign called the Chatterbox Challenge. The aim of the challenge is to use the hashtags #ChatterboxChallenge and #heardwhilstdisabled to break the seemingly public yet unacknowledged silence and give voice to the hurtful comments that are leveled at people with disabilities, as well as raise funds for several Australian disability-centric charities.
I myself added a couple of tweets with the ChatterboxChallenge hashtag, figuring I could put into words things that I hear all the time as a blind woman. I didn’t think anything more about it – much less considered writing a blog post about it – until two fairly well-known personalities got into hot water for heartless comments aimed at two people who just happen to be in wheelchairs.
Ten days ago, social media was abuzz when Kanye West called out two fans who did not stand like the rest of the crowd during one of his songs at a concert in Australia. One of them waved a prosthetic limb in the air to show security (yes, security) that they were unable to do so, and the other was in a wheelchair. The reviews of a follow-up concert indicated that Kanye changed his schtick to something like “If you are able, I want everyone to stand.” Whatever one thinks about Kanye’s music, there is no reason for pressure to be exerted by a performer to all but force anyone for any reason to do something they are not willing or able to do.
Then yesterday I saw this tweet:
<blockquote class=”twitter-tweet” lang=”en”><p>Nothing sadder than a hot person in a wheelchair.</p>— Ken Jennings (@KenJennings) <a href=”https://twitter.com/KenJennings/status/514125105426071553″>September 22, 2014</a></blockquote>
<script async src=”//platform.twitter.com/widgets.js” charset=”utf-8″></script>Ken
Jennings is quite possibly best known as the man who won 74 rounds of “Jeopardy!” back in 2004. Since then he has appeared on other game shows and written several books, along with many other pursuits. For someone who is seemingly so intelligent, comments like this demean both the utterer and the recipient.
Personally, the comments along this vain are backhanded compliments and full-frontal insults. To say that it’s too bad that an attractive person has a disability indicates the worthlessness of that person. Sure, everyone likes to be told they’re attractive, but to throw the disability into the equation removes any compliment that was intended. People without disabilities would feel angry and insecure if someone walked up to them and told them that it’s too bad they have blue eyes because they are truly attractive otherwise. But you don’t hear that happen, at least not publicly; instead, we with disabilities seem to be open season for insensitive comments that no one else would be expected to tolerate:
Ironically, it’s issues of employment and family life (and the issues that surround them) that seem to draw the most insults. I have posted before a brief synopsis of my employment journey, so I will not belabor the point beyond saying that it is incredibly demoralizing to be told that we have the smarts, skills and education, but… well, sorry! We’re just meant to be inspirational for living our lives the way other people expect to see as a “disabled” life. As for families? medical “professionals”, social workers, and even families act surprised and shocked that a person with a disability wishes to get married or have children. Someone I follow on Twitter posted that a former friend told his wife that she shouldn’t have babies with him because he’s blind. In a worst case scenario, parents with disabilities seem to be at increased risk to have the children they do have taken away from them because of the perception that they are unable to take care of themselves, much less the most vulnerable of our society.
I have no problem answering honest questions about how I do things – cook, know where things are around my house, match my clothes – for the simple reason that people question what they don’t know. Heck, I’m not above asking a few questions myself. Last year I worked with a woman who used a manual wheelchair, and I had this crazy question for her. I was a bit embarrassed, but I asked her what she did with all the cupboards above her apartment’s kitchen counters. I know it sounds silly, but I honestly just didn’t know. She laughed and told me she crammed everything in the lower-level cabinets and put things she didn’t use often into the upper cabinets with the help of family and friends. This is the difference between asking questions and making patronizing comments that demean. Here’s an idea: if you don’t want someone saying such a comment about you, keep your mouth shut and your hands off the keyboard.
I was just talking about this the other day! My son with Down Syndrome is always getting backhanded compliments, like “He must have a mild case of Down Syndrome, because I can’t tell from looking at him.” It makes me want to scream!
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As someone who doesn’t notice the visual characteristics of Down Syndrome, this perplexes me. What, exactly, is someone with DS supposed to look like? Do physical characteristics indicate the severity of DS? (if that’s impolite, tell me to go away). I have a neighbor whose daughter has DS as well. It is obvious that she has cognitive delays, but she speaks very clearly (her mom once told me that she worked tirelessly on her speech when she was young).
And I suppose looking “normal” is a compliment, but… WHAT?
I guess in some ways my blindness is very obvious (I have one eye that is blocked over by scar tissue). No one has ever accused me of faking, although I have heard it happen to people who have impaired vision and can do things like read a print menu. I once had a guy at a bus stop tell me that I should get surgery so my eyes would look normal (I wanted to hit him with my white cane).
People just don’t get it, do they?
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Yes. Because all individuals with Down Syndrome have the same abnormality of the same chromosome they do share very similar physical characteristics. But telling me my son doesn’t look like his disability is an insult. I don’t take it as a compliment because i know he struggles just as much as someone who quote “looks like they have it”. You are right, people just don’t get it.
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Oh and to answer you question. No, physical characteristics do not indicate the severity of DS. There are no levels. You either have it or you don’t. Of course there are higher functioning people. Just like with any other human being.
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the issue of compliments and what’s considered offensive or heartless is a gray area. i.e saying somebody is attractive is a huge one. well, the thing that is worrying me at the moment is what constitutes harassment as I tend to think that sexual harassment is too wide a definition. I’m going to use a couple of senareos to illustrate what I’m talking about. firstly, when I went to my employment agency to sign some paperwork and the time had come for me to organize a taxi home it was once the driver arrived as the lady who assisted me to sign paperwork had waited for the taxi with me, the driver commented on how attractive this lady is and I’d been having a bit of a laugh moments before and I suddenly felt a little embarrassed because for somebody to say that a woman is attractive to me felt as though it was giving me licence to give a compliment which I wouldn’t ever do especially if the woman in question was in a professional relationship with me and if somebody comments that a person is attractive I just take their word for it. second senareo was in feburary this year as I was at work at the time. I was sitting outside having some lunch and it was a particularly hot day and a very attractive young lady came up to me to ask if I might want to sit in the shade out of the sun I said yes I’d move into the shade this young lady identified herself as a student nurse and as far as I’m concerned I am a staff member so complimenting somebody on the fact they sound attractive really isn’t something you do within a work environment especially if you’re a staff member and they’re a student. I held my tongue because I wasn’t sure how a compliment like that could go down even if the student nurse said thankyou she may have accepted it well enough but would I have had to explain myself to somebody for giving that compliment or could I have easily just given the compliment provided it was taken purely as such and just let it go? I chose to play it safe and not say anything although I did confide in my job onsight support person later when getting a taxi home and I’m also told that it’s how a compliment is interpreted so I just don’t drop compliments because one never knows how people can take them and everybody takes things differently.
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