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Life Unscripted

Monthly Archives: September 2014

When compliments are Insults

24 Wednesday Sep 2014

Posted by blindbeader in Uncategorized

≈ 6 Comments

Tags

chatterbox challenge, comments, disability

“What a shame, you’re so pretty!”

Thus begins this article by the Huffington Post, bringing awareness to a social media campaign called the Chatterbox Challenge.  The aim of the challenge is to use the hashtags #ChatterboxChallenge and #heardwhilstdisabled to break the seemingly public yet unacknowledged silence and give voice to the hurtful comments that are leveled at people with disabilities, as well as raise funds for several Australian disability-centric charities.

 

I myself added a couple of tweets with the ChatterboxChallenge hashtag, figuring I could put into words things that I hear all the time as a blind woman.  I didn’t think anything more about it – much less considered writing a blog post about it – until two fairly well-known personalities got into hot water for heartless comments aimed at two people who just happen to be in wheelchairs.

 

Ten days ago, social media was abuzz when Kanye West called out two fans who did not stand like the rest of the crowd during one of his songs at a concert in Australia.  One of them waved a prosthetic limb in the air to show security (yes, security) that they were unable to do so, and the other was in a wheelchair.  The reviews of a follow-up concert indicated that Kanye changed his schtick to something like “If you are able, I want everyone to stand.”  Whatever one thinks about Kanye’s music, there is no reason for pressure to be exerted by a performer to all but force anyone for any reason to do something they are not willing or able to do.

 

Then yesterday I saw this tweet:

 

<blockquote class=”twitter-tweet” lang=”en”><p>Nothing sadder than a hot person in a wheelchair.</p>&mdash; Ken Jennings (@KenJennings) <a href=”https://twitter.com/KenJennings/status/514125105426071553″>September 22, 2014</a></blockquote>
<script async src=”//platform.twitter.com/widgets.js” charset=”utf-8″></script>Ken

 

Jennings is quite possibly best known as the man who won 74 rounds of “Jeopardy!” back in 2004.  Since then he has appeared on other game shows and written several books, along with many other pursuits.  For someone who is seemingly so intelligent, comments like this demean both the utterer and the recipient.

 

Personally, the comments along this vain are backhanded compliments and full-frontal insults.  To say that it’s too bad that an attractive person has a disability indicates the worthlessness of that person.  Sure, everyone likes to be told they’re attractive, but to throw the disability into the equation removes any compliment that was intended.  People without disabilities would feel angry and insecure if someone walked up to them and told them that it’s too bad they have blue eyes because they are truly attractive otherwise.  But you don’t hear that happen, at least not publicly; instead, we with disabilities seem to be open season for insensitive comments that no one else would be expected to tolerate:

 

Ironically, it’s issues of employment and family life (and the issues that surround them) that seem to draw the most insults.  I have posted before a brief synopsis of my employment journey, so I will not belabor the point beyond saying that it is incredibly demoralizing to be told that we have the smarts, skills and education, but… well, sorry!  We’re just meant to be inspirational for living our lives the way other people expect to see as a “disabled” life.  As for families?  medical “professionals”, social workers, and even families act surprised and shocked that a person with a disability wishes to get married or have children.  Someone I follow on Twitter posted that a former friend told his wife that she shouldn’t have babies with him because he’s blind.  In a worst case scenario, parents with disabilities seem to be at increased risk to have the children they do have taken away from them because of the perception that they are unable to take care of themselves, much less the most vulnerable of our society.

 

I have no problem answering honest questions about how I do things – cook, know where things are around my house, match my clothes – for the simple reason that people question what they don’t know.  Heck, I’m not above asking a few questions myself.  Last year I worked with a woman who used a manual wheelchair, and I had this crazy question for her.  I was a bit embarrassed, but I asked her what she did with all the cupboards above her apartment’s kitchen counters.  I know it sounds silly, but I honestly just didn’t know.  She laughed and told me she crammed everything in the lower-level cabinets and put things she didn’t use often into the upper cabinets with the help of family and friends.  This is the difference between asking questions and making patronizing comments that demean.  Here’s an idea: if you don’t want someone saying such a comment about you, keep your mouth shut and your hands off the keyboard.

I don’t want to be blind today

18 Thursday Sep 2014

Posted by blindbeader in Uncategorized

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A friend on twitter posted a link to this blog today.  While for the most part, I do not like to complain about being blind, sometimes it is frustrating, and other times I just want to stand in an open parking lot and scream to high heaven and wonder why I am this way – not so much because I can’t emotionally handle blindness, but I can’t emotionally handle others’ perceptions of me being blind.

 

Thankfully, I have many sighted friends who can see beyond blindness, and blind friends I can call on days when I really and truly hate it.

 

 

I Don’t Want to Be Blind Today.

Did you hear that?

18 Thursday Sep 2014

Posted by blindbeader in Uncategorized

≈ 1 Comment

Tags

blindness, hearing, travel

One of the most common comments or questions I get is whether or not my hearing is more “in tune” than those who can see.  While science does indicate that the brain does compensate for lack of sight, I personally believe I hear as well as I do because I am more used to using my ears to hear the world around me.

 

The one main downside to this, as opposed to being able to see, is that there are only a handful of things that can obstruct one’s vision, but many many things that can change what one hears and how one relates to the world.

 

SNOW

Alberta (particularly southern Alberta) experienced snow in September last week.  Thankfully, the snow didn’t stick here, so I was in good shape to travel.  But after a big dump of snow like that, it makes travel much more challenging (ever hear of the saying “blind man’s fog”?)  It is very easy to get yourself turned around when there’s 3 inches of snow on the ground, unshoveled, and snow keeps flying; thankfully my guide dog is an old pro at navigating through such a quiet, occasionally slushy mess.  My friend Meagan wrote a very descriptive blog post that describes the challenges of navigating the snow; I will not belabor it.

 

RAIN

I grew up near Vancouver, affectionately dubbed the “wet coast”, so you’d think I would be completely familiar with changing my spacial relation when we get a big rainfall or a bunch of puddles on the roads.  Nope!  More than once I have waited more than one light-change cycle because cars driving through puddles sound like they might be in the turning lanes.  This isn’t a problem once that rain as stopped, but I don’t like the rain, refuse to carry an umbrella, and have a dog that hates to get rained on so much that I bought her a rain poncho; if it’s raining hard outside at the immediate moment, I am unable to multitask or think much about anything beyond putting one foot in front of the other and hope I don’t get splashed by vehicles speeding through the puddles.

 

HEAD COLDS

Thankfully for me, this is quite rare, but I am currently recovering from a pretty intense head cold.  Just before the worst of it hit, I came across a situation that I didn’t expect.  My ears were slightly plugged, and my nose was stuffed up beyond belief.  I took Jenny for a walk around the block, and at one point she slowed down.  Usually when she does this it means she’s found something yummy on the ground that she’s debating about picking up.  I waved her forward, and she took a right-hand turn nearly at a run.  For about two seconds, I thought “What in the world are you doing?”  And then I heard the car zooming past my left shoulder.  If we’d gone forward, we would have crossed a busy street with no crosswalk against the light into traffic.  Yikes!  I’ve since become much more cautious when I have a head cold.

 

CROWDS

Crowded buildings have a sound all their own.  Get a hundred people together in a room, particularly one with echo, and it’s anyone’s guess where anyone or anything is!  Even if it’s a familiar place, like a mall, sounds of laughter, footsteps, and screaming children bouncing off walls can make it a veritable “maze of mirrors” for the ears.

 

These are just a few things that continually change the dynamic of my auditory world.  We are more used to interpreting our world through sound, largely through necessity rather than desire, but it all does work more often than not.  We are continually forced to adapt, and for the most part, at least to me, it’s second nature.  Thankfully, today is sunny, my cold is nearly gone, and I am not going to be trapped in a crowded echo chamber anytime soon.

Employment: Perception and reality

10 Wednesday Sep 2014

Posted by blindbeader in Uncategorized

≈ 3 Comments

My wonderful friend Meagan has a terrific way of putting things into words as to be classy, confident, and even humorous as the situation calls for it.  Unfortunately, she recently ran in to a situation that could have nearly changed the course of her college degree and, ultimately, her career path.  Luckily for her, she was able to work around it, but the whole situation was based on one professor’s perception of course materials and Meagan’s ability to complete the coursework only in the manner in which it was being taught.

 

Sadly, this situation is far from unique.  After 30+ years as a blind person on this planet, I would like to think that I am used to having to educate the public on etiquette, access concerns, manners, and simply acting around me as they would anybody else.  Unfortunately, in areas of employment and education, there are still many obstacles to overcome.  Blind people have made leaps and bounds in the professional world, leaving their mark as lawyers, researchers, athletes, translators, business owners, and many others; yet a vast number of us are under- or unemployed.

 

The year I graduated from high school, I decided to take a one-year college certificate program.  I had even visited the program before applying, and the computer program in use at the time was completely accessible with JAWS, the screen reader software I used in order to use a computer.  One component of the class was a 2-week practicum placement in April.  A month before class started in September, I got a letter from the program coordinator, signed by the Disability Services office, stating (paraphrasing) that since I was blind and unlikely to find employment in this field of work, I would have to find my practicum placement before beginning classes in September.  This was a qualification for me only – my classmates were scrambling in February to find theirs – but lucky for me, my mother had contacts in the field.  I could have fought it, yelled and screamed and made a big stink, but instead we sent in eight letters from organizations across Alberta, BC, and the USA stating that they would be willing to accept me as a practicum student in April.  I was ultimately able to take the class and completed my practicum by doing actual work, rather than just sitting there and job-shadowing like my classmates.

 

Unfortunately, the disability services coordinator was right.  I applied for any local job I could get in that field, and as soon as it came out that I was blind, the door would just slam in my face.  It didn’t matter that I had gone through rigorous training and had the skills and aptitude for the job; it only mattered that I didn’t have two working eyeballs and needed a piece of software to be loaded on to their computers for access.  This all came to a head when I applied to a federal agency for a job across the country and requested permission to do the pre-employment testing locally.  This agency basically said that because I was blind, there was no way I could perform the duties of the position; one of their many reasons – some legitimate though not insurmountable concerns – was because I couldn’t read body language of coworkers to know that something was going on in an emergency situation (don’t get me started on my opinions on that).  I let it go, moved to Alberta, and tried again for the same job in Edmonton.  They called me in for testing, and I was told that because I was blind, they were sorry, they couldn’t possibly hire me for this job.

  My friends and family told me that I had a legitimate Human Rights complaint, but I was 20 years old and simply wanted to work, period.  I’d hit that point where I didn’t care what kind of work I did so long as I got my foot in the door somewhere and gained the self-respect of working for my pay check.  Looking back, I think perhaps I could and should have pursued it, but I still question the wisdom of taking on a federal government agency.

 

Fast forward several years, and I was once again back on the job market.  I had been steadily employed for more than seven years in a variety of jobs (the most recent of which had been for five years), and I was sending out resumes as fast as I could.  In this province, we have a shortage of workers; I would say that my callbacks to resumes was about 50% (incredibly high).  Over more than 50 interviews later – some good, some ok, and some terrible – I was still unemployed.  There was the security company that said that I couldn’t possibly be fast enough on a computer to respond to an urgent situation, and no amount of explanation or even demonstration would change her mind.  I had one positive interview with a company that was super excited to go paperless and was even willing to train me in basic accounting, but ended up hiring someone with accounting experience (I do NOT fault them here, as they stated up front that they were backlogged three months).  One company all but told me I could do the job, they would seriously consider my application, and then spent two weeks dodging my follow-up phone calls and then leaving a curt message on my voicemail stating that they had hired someone else…  All of this, and many shades in between.  Thankfully, after five months of unemployment, I wound up at an unglamorous call centre for a pizza place who treated me well and enabled me to train with my guide dog and still remain employed by changing my hours around training.  Once I got bored of that job, I sent out one single resume, figuring that I could be picky about where I applied… and after a 1.5-hour-long interview, I am now employed where I am now.  I work terrific hours, love my job, and my coworkers are fantastic.  My boss went to school with someone who is visually impaired, so he at the very least had some idea of the capabilities of someone who cannot see.  If something isn’t accessible, we brainstorm ways to make it so, or my boss changes the project to something that is accessible.  I am truly blessed indeed.

 

Sadly, many blind people are not employed as I am – happily, or at all – largely due to lack of experience, due to the perception that we cannot do certain activities (use a computer, keep workspaces tidy, proofread reports).  it is often customary for the blind job applicant to prove they have the skills before being hired – something that is rarely if ever required of a sighted job applicant.  We can dress ourselves up, have the perfect resume, nail the interview with confidence, class and grace… and yet…

 

I don’t have any easy answers.  Someone, somewhere, has to be brave enough to take a chance.  Many blind people spend years of schooling and thousands of dollars on education and still cannot get a job for which they are qualified.  While I know this is not unique to the visually impaired, statistics show that we are critically under-employed or unemployed (anywhere from 60-75% unemployed, many not even considered as part of the labor force).  We can push and shove and try and legislate, but the truth still remains that if there is a sighted job applicant in the running alongside a visually impaired one, there doesn’t have to be a good reason that the blind applicant does not get that job.

 

Where do we go from here?  I think it’s up to us to be productive members of society at any cost.  Live a well-rounded life with friends, family, pets, activities, volunteer work, hobbies, etc.  I cannot tell you how many people – sighted and blind – don’t have any real-world interests outside of the virtual worlds of computers and cell phones.  This can only serve to hurt us, and perpetuate the idea that blind people are just too different to fit in.  While some of us like to think that how we portray ourselves doesn’t matter, it definitely does.  If one comes across as ungroomed, socially awkward, and having very few interests and goals, does that not perpetuate the very perception we are trying to overcome?

Getting girlie: on Fashion and other things

04 Thursday Sep 2014

Posted by blindbeader in Uncategorized

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Anyone who knows me will tell you that I am by no means super-girlie. Don’t get me wrong, I like looking nice with coordinated clothes, but I have no use for makeup and brand names by themselves generally annoy me (with the exception of sneakers).

Does this have to do with my blindness? I don’t know. I know many visually impaired women who love nothing better than to spend a day at the mall running around different clothing stores and trying out makeup. What I have noticed is that most of them have considerably more vision than me. Many sighted friends and relatives have told me that if I could just see how makeup can enhance my appearance, then I would probably enjoy fashion and makeup for their own sakes. Whether this makes a difference, or if this is simply a quirk of my
personality, I doubt I’ll ever know.

I do enjoy the occasional trip to the mall, browsing, what have you, but since my eyes don’t catch the displays in the stores, it’s a matter of feeling clothes to find what I like. It doesn’t matter how good something looks; if I hate the fabric, all bets are off. This has resulted in a wardrobe consisting of mainly neutral coloured pants/skirts with some more brightly-coloured tops. I love denim, especially stretchy denim, knit tops, cotton or stretchy shirts – anything with buttons on the cuffs – and long skirts. My shoes are almost always black or navy, if for no other reason than they go with everything.

Makeup? Yeeeeeeech! I have worn makeup several times in my life, and with the exception of some blush and lipstick, it feels really thick and cakey to me. Nothing near my eyes, thank you very much; you can have all the eyeshadow in the world.

I have spoken to several other visually impaired women over the years about this, both those who enjoy makeup and fashion and other girlie things and those who don’t. Thankfully this does not seem to be as divisive an issue as choices in technology, employment, or education in the “blind community”. If only we could all take a page out of this book and accept each others’ personal choices so easily.

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