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Life Unscripted

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Life Unscripted

Tag Archives: support

With a Little Help from my Friends

09 Saturday Jun 2018

Posted by blindbeader in Uncategorized

≈ 2 Comments

Tags

changes, friendship, personal, reflection, support

A few days ago, I saw a video posted online of a guide dog user being denied entry to a well-known New York club. Not only did their friends stand in the gap for them, trying to advocate and to explain that their friend had a right to be there, but also physically going into the club and making the manager address the issue.

At the time, I commented about the true sense of friendship between these three.
“And her friends refused to take it lying down. They refused to allow the manager to ignore the issue, they made him flat-out say that he didn’t care about the law and would discriminate anyway.
I want allies like this.
Allies who will stand in the gap when I say with a sigh that feels like a scream – because of someone’s actions TOWARD ME – “I’m sorry for ruining your night.””
And as I thought about it, I realized that, in fact, I do have friends and allies like this.

Just today, I discovered a post I wrote that puts into words what true friends are.
“Good friends are those who will talk to you about anything, talk to you about nothing, listen to you, cry with you, laugh with you, let you forget your troubles for awhile, tell you the truth even if you don’t want to hear it, visit you in the hospital, stand in line at the pharmacy with you, dance with you, laugh at your bad jokes, drive you home in a snowstorm, encourage you to try new things, accept you as you are.
I truly have great friends.”

 

A shoulder to Lean On

 

A few months ago, I went through a pretty unpleasant experience. In many ways, I felt like my brain and my body had betrayed me in ways they never had before, and I struggled to make sense of it all. From some pretty surprising corners, both new and old friends reached out and listened as I sorted through my feelings and my reactions to what happened. Their attentiveness and occasional “checking in!”s made a ton of difference at a time where almost nothing in my life made sense. When, after a few weeks, I was still struggling, those same friends cheered me on as I reached out for professional assistance. They made that time in my life – which was the beginning of a journey of serious and life-changing self-discovery – a lot easier to confront.

And, sometimes, friends do not have any idea that they’ve been a lifeline. When my employer sent out the weekly newsletter featuring a marathon runner with a disability, I reached out to her and said hello. We talked about what we had in common – disability, running, dislike of Nicholas Sparks books – for most of that day. What she doesn’t know is how talking about those things helped keep me together on a day where I was emotionally struggling, probably harder than I ever have. It causes me to stop and wonder… how often do we support our friends without even realizing it? In those moments where the struggle is not so obvious, how often do we unknowingly step into that space, lend a hand, and lift our friend up?

 

Ch-ch-ch-changes

 

I’ve had many groups of friends over the course of my life. Some friendships formed through proximity (school, work), others through common interests, and others through shared beliefs or lived experiences. Some have remained generally constant, while others have ebbed and flowed over the years. When life has taken us different directions, some have quietly faded into the background while a painful few have been quickly cut off at the roots. As I’m going through a pretty prolonged and complicated period of self-discovery, I’m fascinated at how some friends and I are growing closer, and viewing life through similar lenses – sometimes after long absences from each other’s lives – while others who were much closer to me when I thought, talked, and believed a certain way have faded into the background. For the most part, I really do think there’s a lot of truth to that quote about friends being for a reason, a season, or a lifetime. Sometimes, it’s painful and fascinating to learn which friends are in your life for what period of time.

 

Hands and Feet

 

I’m just going to come out and say it. Sometimes, adulting sucks. There’s big stuff – like moving, starting a family, getting a new job, experiencing illness or loss… you get the idea. Friends are regularly present for such events – and if they can’t be, their absence adds pain (sometimes more pain) to those big life experiences.

But friends show up in the little ways, too. It’s boring to buy groceries and go to the post office and clean your house. Sometimes, though, you can reconnect with friends and neighbors just by doing those adult things. Just last week, Ben and I ran into a neighbor and friend in the produce store we’ve been shopping at for years. We chatted and reconnected just while waiting in line. Sometimes, a friend who works in my office building will ask me if I’m going to a certain area she’s going anyway – sometimes I am – and we end up shopping or mailing packages and chatting about life. Another will join me on a run – seeming to pick those days where I REALLY don’t wanna! – and keep pushing for me to work hard and do well.

 

“I Want What’s Best for You… but I Love you As you Are”

 

I am truly blessed to have some of the most honest friends in the world. Sometimes that means telling me some uncomfortable truths about myself – especially if I ask directly. Sometimes I get told when I’m being too demanding; other times I’m reminded that I’m overloading a friend with my own emotional baggage. As painful as these conversations are sometimes, I’m glad that friends love me enough to tell me these things before they fester into resentment and anger.

And while it’s so important for friends to love us for who we are – and I am blessed to have friends who love me for me – they also cheer us on when we expand our horizons. When I first told one friend that I was thinking about signing up for a half-marathon on my upcoming trip, the first thing she said was “do it!” Sometimes you need a friend to talk you through a situation – finding all the angles, asking questions for you to consider – and other times you need a friend to just give you the push to go for it. I’m blessed to have friends who can – and do – do both.

 

I Could Go On… but What About You?

 

There are so many other things that make good friends, but these have affected me most deeply lately. If you recognize yourself in this post, thanks for being my friend; if you don’t, this in no way diminishes my love for you or how much I value our friendship.

What about you? What makes a good friend? Have you had an experience where a friend appeared from an unexpected place, or supported you without even knowing it?

Tell me about it in the comments below!

“Sorry, not Interested!”: How Disability advocacy Is a LOT like Telemarketing

11 Saturday Nov 2017

Posted by blindbeader in blindness

≈ 1 Comment

Tags

allies, disability, equality, perception, rejection, support, telemarketing

Not long ago, I spent several months as a business-to-business telemarketer. It was, by far, the most challenging – and in a way the most empowering – job I ever had. Sales doesn’t come naturally to me, but it was a skill I wanted to cultivate. But as with my ability to grow plants (I think about them and they die), my sales skills looked a little bit scraggly by the time another – more well-suited – opportunity came along.

But during those few months, I couldn’t help noticing how telemarketing is a lot like disability advocacy, and in some unexpected ways.

 

Read your Audience

 

When you make a sales call – any kind of sales call – it’s not enough to be friendly. In fact, if you’re too friendly, you can come across as sleazy or a pushover. Conversely, you can’t be too aggressive, because pushiness can be spotted a mile away. No one will buy your product or book an appointment with your service if you make them feel like you’re only in it for the sale. Even slight word changes can be the difference between making that sale and pushing a prospective buyer away.

Similarly, there are so many ways to do disability activism, some more successful than others. The “friendly educator” may get some individual positive results by remaining peaceful, while still feeding into the narrative of disability equating to docile compliance. But the chip-on-the-shoulder anger – over everything – can create equally damaging results, thrusting aside barriers while simultaneously alienating the very people to whom we are advocating.

Whether in sales or activism, it’s important to read an audience. Some people will respond to friendly coaxing; others do require a more forceful approach. In either arena, I have found that reading a situation will likely provide better results than a one-size-fits-all methodology.

And yet, no matter how one presents oneself, it’s important to be authentic; people can see a phony mask of sincerity or bravado a mile away, and few things shut them down more quickly.

 

It’s Hard, Dirty Work

 

When I was making sales calls, I felt a certain sense of shame surrounding the work I did to make a living. There’s a huge stigma around cold-calling unless it’s only one part of multi-faceted job duties. It’s not a warm-and-fuzzy industry, and it has been given a bad name by disreputable companies with pushy sales tactics and unethical practices (for the record, I worked for a company that strongly stressed ethical conduct). You make call after call after call, hoping to build enough trust and rapport with each contact to get that sale. If you are successful enough at it, your success can buoy you up when inevitable rejections drag you down. But your job – day after day after day – is to try and try and try again.

In a similar way, unless disability issues directly affect someone, few people seem to want to discuss activism. The main disability narrative – of recipients of charity, of helplessness, of pity – doesn’t leave much room for strong, vocal or visual opposition. And when this gets brought up, it frequently feels like we’re speaking into an echo chamber and hearing the sounds of crickets in response. Sometimes it feels very very thankless and exhausting, and many people seem to think that it’s our full-time job to educate the public on an on-call basis with no compensation – material or otherwise – for it.

 

You’re doing it Wrong!

 

There’s always a peanut gallery. It can be both a huge benefit – for encouragement and solidarity – and soul-destroying because of all the second-guessing. In sales, you’re either not pushing hard enough, not creating your own opportunities, not getting the job done. On the other hand, you’re wasting your time on prospects that are just too polite to tell you “no.” In disability spaces, I’ve seen so much finger-pointing. We’re “too pushy”, “too soft”, too understanding, or won’t just let it go, cut our losses and move on. And while I’m all for “best practices” (they’re important to provide some guidance) we all have our unique style of doing things that can still get the job done even if our colleague doesn’t do things exactly the same way. In fact, my successful sales style – and activism style – will differ from someone else’s. And I think they should; that doesn’t make any particular style wrong or bad, just different.

 

Some people Just Won’t “Buy it”

 

In sales, you can do everything right, and still your prospect isn’t interested. It’s not personal, not about you, and there’s nothing you can do about it.

Sometimes you make your “sales pitch” at inopportune moments, and sometimes – no matter how gentle you are – any pointing out of inequality or access concerns are just not ready to be received. This doesn’t mean we stop trying; it may mean we need to reflect on our strategy, ask some probing questions, or – in some situations – make an executive decision to cut our losses and move on.

 

But There are Those that Will

 

Acceptance can come from some truly unexpected places. I called one company just after they’d watched a Youtube video put together by the company I was fundraising for. They were so startled by the coincidence that they threw a huge commission my way; it was the biggest sale I ever made, and it came out of nowhere.

Sometimes, it’s easy for people with disabilities to constantly be in “fighting” mode (to maintain our right of equal access, personal autonomy, or basic human respect), and we can lose sight of the people in our lives who do “just get it”. Sometimes, they come from unexpected corners – from the teacher who asks great questions to the parent who both nurtures and empowers to the friend who knows how to do just the right things at just the right time to the stranger who asks how they can help and respects our reply. Sometimes, we write off opportunities so easily because we feel so discouraged by all the rejection and mental gymnastics just to get through the day. And yet, those moments of brilliance, of comeraderie, of success, spur us on to keep trying.

 

So What do we do from Here?

 

Even seasoned sales reps need to fine-tune their pitch to connect with prospective donors or buyers or customers. Just because something used to work doesn’t mean it will be effective next month or next year. Similarly, I do think disability activism may need a facelift as well, to allow each of us to self-advocate in the way we do best without pointing fingers at how wrong everyone else is. Sometimes aggression is necessary, and sometimes it gets in the way; sometimes we swat flies with a sledgehammer when luring them with honey would’ve been better, and sometimes we let things go that we probably shouldn’t. But the best salespeople – and the best disability activists – are always learning and questioning, fine-tuning their craft. Even though my days as a telemarketer are over, I’m still an advocate for myself if no one else. Everyone hears “no” sometimes, and, in my case, far too often it is because of my disability; but hopefully with more of those great people who do get it, we’ll soon live in a world where there will be more “yes”s than “No”s, and the “no”s are based on facts and bad timing, not negative perception.

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