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Blind Lady Gets Sh*t Done, November-December: Finishing Strong

01 Friday Jan 2021

Posted by blindbeader in Blind Lady Gets Sh*t Done

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cleaning, learning lessons, personal, reflection

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After an incredibly exhausting October, where sleep was elusive and the thought of warm blankets and books I couldn’t concentrate on seemed more appealing than doing stuff around the house, it seems that the last two months of the year put me back together again. We didn’t have to worry about washing dishes by hand, or putting off washing dishes by hand. I could just do my job, go running, spend some time on my exercise bike, and yes… get sh*t done!

November: Puppy Dogs and Plumbing Problems

Ben’s puppy, Wyatt, comes to visit for a few days. He and Jenny get along like a house on fire – they start each day with enthusiastic greetings, wrestle and play, have a nap, and then regroup for more tug wars – not always with things that are appropriate. More than once we have to take Jenny’s stuffed pink pig away from them… and six weeks later we’re still finding strands of destroyed tug rope in various nooks and crannies of the living room… or (also likely) they’ve re-materialized after Wolfie has balled them up and turned them into her own kitty toys. Wyatt and the kitties co-exist quite nicely, staying out of each other’s way, or firmly asserting boundaries if avoidance is impossible. Unfortunately, both Wyatt and Jenny come down with Kennel Cough, and the puppy party must end unceremoniously.

Once a year I have a plumbing company come in and do a check of the plumbing and furnace. This year, I get told – again – that the whole house pretty much needs to be re-plumbed. Oh, and the furnace needs replacing too. And can we add a humidifier to your new furnace? Why yes yes you can… when the furnace gets replaced. But thanks so much for showing me how to disconnect the plumbing for the old dishwasher that’s going to be hauled away in just a few days!

I go out for a run on a Sunday morning, and come home to find a coughing, mopey dog, and a brand new thermostat on the wall. We realized with Daylight Savings Time that there’s no quick and easy way for me to adjust the temperature settings, or the time. This new thermostat can be operated like a traditional thermostat or through Smart technology, which means that for the first time in my life I can independently program a thermostat! It’s a BIG deal to me, even as it feels like a small thing. Oh, and if there’s ever a reason to open up that wall, we need to watch out for sharp objects – there’s a handheld hole saw that got dropped down there (I’m writing this so that no one can say they didn’t know!)

The brand new dishwasher we’ve waited six weeks for finally arrives on a cold Friday – the same day I realize the snow rake isn’t designed to be used by short people, or blind people… either that or my house is too tall. The massive dishwasher box blocks the pantry door for a day or two, but we’re eating takeout this weekend – skipping the dishes, as we do. The installation, however, doesn’t go as smoothly as the delivery. I hear nothing until 5:00 PM Sunday (the day of the appointment we booked six weeks ago), at which point I’m told that they can’t install today and will be able to reschedule for Tuesday. I decline the offer, and call my friend Keith, who comes by both Sunday and Monday night (due to missing parts) and gives us a crash course on dishwasher installation. I don’t think I could do an entire installation, or explain how it’s done, but I know more than I used to… The first load of dishes that runs through is so quiet that I find myself regularly walking into the kitchen to make sure there’s not a problem. Thankfully, there is no problem, and our dishes get REALLY clean, and we have more time to enjoy the holidays.

December: An Unusual Christmas

It’s proving to be a holiday season unlike any other we have ever experienced. The provincial government has imposed restrictions so that people cannot mix and mingle over the holidays. I take the opportunity to add a few touches to my personal spaces. I completely de-clutter my work space/beading table and even create a couple pieces for the holidays. The old, ratty mat by the back door is replaced with a shiny new one. And the music room receives some TLC in the form of new curtains. I think I need to  spend more time there in the coming year.

So, it is just my partner and I for Christmas. In some ways I am glad to miss the hustle and bustle, and in others I miss the mingling. We enjoy Mandarin oranges and chocolate treats. Christmas dinner turns out to be disappointing – the turkey breast we bought turned out to be sandwich meat… Oops! But Keith and his family save Christmas by delivering an emergency supply of prime rib and mashed potatoes and little green balls of death (brussel sprouts) that I normally don’t like but turned out YUMMY! Even though we couldn’t have Christmas dinner all together, I feel blessed to have friends who, over the years, have come to my rescue in ways big and small.

During my time off from work, we alternate between resting and relaxing, and doing things about the house. We decide to be strategic, starting in the kitchen, and working our way towards the other end of the house. It’s not all done, it’s not all perfect, but the kitchen is reorganized and way less cluttered. The caddy, the portable counter-top unit that every single person who has ever been to my house has bumped their hip on at least once, has now been relocated into the living room. Wolfie is not a fan of this new development, because now she can’t hang out in the kitchen and meow at us. And she seems to show no interest in hanging out in the living room and meowing at us. I don’t think I’ll understand that little gray fluffball…

A Few Reflections

When I started this journey of making my house my home, I did so with the hope to make my place both somewhere I would want to live and a place that I could be proud of. I had no illusions that my house would ever become a show place – I’m not the best housekeeper in the world, and my place is old and kinda beat up – but I wanted to have people come over and not worry so much about whether they were politely avoiding comments about the state of it. I’m not sure if I’ve succeeded to this end – looking back I realize I’ve ebbed and flowed in drive and motivation – sometimes with great bursts of productivity and sometimes trying to stop myself from drowning in inertia. I’ve kept a plant alive for almost a year – something that a friend who is no longer with us would be super proud of if she could see it. Perhaps Happy Plant is a lot like me – sometimes bursting forward and sometimes quietly growing in incremental ways.

A succulent plant in a pot. There are no flowers on the plant, but it is very green and growing taller.

I’ve done a lot of things myself this year, and a lot more with other people either assisting or directing. Maybe, just maybe, I don’t have to do everything myself. Maybe, just maybe, there are times to rest in the little things, where small pleasures and small victories are the important ones. This year, like for so many others, hasn’t been the year that I have expected. I have experienced great joy, Wolfie has come home! I have experienced sadness with the loss of friends. I’ve done things I never thought I would do, like actually sort of want to barbecue, or cut the grass. I’m not terrified to go into any part of my home, which honestly was a really big thing for me earlier this year. Maybe, that’s enough. Maybe the symbolic burning of things – like the dishwasher box and the papers I sorted earlier this year – is a way to clear out the old feelings of shame and expectation I’ve carried for so many years.

2021 will also look different – I won’t be running Boston like I thought I would. I don’t know all of what it will bring – I hope it will bring joy and love and peace. All I know is that, as much as it’s up to me, I’ll do what I can to continue this journey of home improvement, and to work on the things within myself that need to shift. I’ve got a few things on the go for 2021 already. My hope is to write more, to have some fun with the writing process, and I have some ideas that I’m excited to share. As I am writing this, I realize that maybe I got what I needed out of 2020 – it’s taken a lot, but given me much as well that I can carry into 2021. Who knows? Maybe in a year, I’ll look back at 2020 and realize that without it, 2021 wouldn’t be the year it will be. So let’s look forward, clinging to hope, doing what we can, wherever we are, and, above all, be kind to ourselves and each other. When it comes time, my home will be ready.

Blind Lady Gets Sh*t Done, January: All over the Place

31 Friday Jan 2020

Posted by blindbeader in Blind Lady Gets Sh*t Done

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cleaning, learning lessons, organizing, personal

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Every journey starts with a single step. I didn’t set out to blog about boring stuff like cleaning, organization, and home maintenance. I just wanted to get this house whipped into shape, turning it into a sanctuary for myself and for others. I’ve had to confront some truths that haven’t always been pretty. But this simultaneous home- and self-improvement strategy seems to be taking, even with a setback or two… because I’ve got myself some momentum! And sharing this journey makes everyone feel less alone – because I now know I’m not the only one with a terrifying basement of doom and a strong avoidance strategy.

January saw me divest myself of extra flooring, a deep freeze, and a whole lot of paint. I searched for things I couldn’t find, and found things I didn’t realize I still had. Little “projects” turned into moderate bursts of productivity. I’ve felt a range of emotions – joyous to despondent, overwhelmed to productive, accomplished and…. something less.

January has been the warm-up I desperately needed… in more ways than one.

 

January 1-5: “Get that THING out of my House!”

 

There’s been a massive deep-freeze in my furnace room since we bought the place, and it’s so large that my Dad and I joke that they built the house around it.

I’m not eating as much meat – particularly beef – as I used to, and this thing is so large that I don’t have a hope of making much use of it. I’ve got enough freezer space that I’m using efficiently. That thing’s been empty for months… time for it to go.

I posted on my community league’s Facebook page months ago – something like “free to good home… you can move it? You can have it.” A friend and neighbour emailed me, telling me that she and her family could use it. I sent her the measurements and reiterated – you can move it, it’s yours!

It’s Saturday morning, and my friend is here with her husband and eldest son. Between the three of them, it takes just under an hour to divest my house of its largest most energy-deficient appliance. In the process, they have to move all of the shelving to some space out of the way of the furnace room. The shelving and other odds and ends wind up spread out over my basement bathroom and main area. There’s a path to the basement fridge/freezer, but I’m out of luck if I get the sudden urge to make a 12-pound turkey (the fridge/freezer doors are blocked by a shelving unit). Beyond that… it doesn’t immediately impact my life too much.

The only way I can move the shelving back in to the furnace room is to empty and organize.

So that’s what I do. I sweep the furnace room so that it doesn’t look as much like a drywall factory blew up, then pick a shelving unit to organize at random (okay, maybe not at random… but it’s the first one I come across when I enter the basement of doom). With the help of one or 2 Aira agents, I set six cans of paint aside to go to the Ecostation. I also discover that I own an auger (the thing that unclogs drains, not the thing that has anything to do with grain silos), wood floor cleaner, and a whole bunch of hand tools that have been buried for years. Within 18 hours another neighbour picks up a bunch of canning jars – I hope they get more use out of them than we did. I haul the shelving unit to the back corner where the deep freeze used to live. I can now name everything I have on every shelf – tools on one shelf, cleaning supplies on another – and lay my hands on all of it. My basement still looks moderately terrifying, but it’s a basement! So for right now, it can wait.

 

 

January 6-12: “This is Cross-training, right?”

 

The first full work week after the holidays seems to drag on forEVER. My energy has been waning, but I’ve made it out to marathon training clinic, then decide to stay home and hunker down while snow blankets the city on Wednesday.

Once the snow stops falling on Thursday, I get out the shovel. I’m not particularly proficient at this task, but I get my walks shoveled – competently in the front, passably in the back. It takes forever – but the Edmonton Oilers game keeps me company – and straight lines seem to elude me. I hope I’ll get better at this with more practice, but for some reason I have my doubts. Also, I’ve got a snow rake that should get the snow off the roof, but I haven’t had an opportunity to use it – I feel like I need someone with me to give me directions so that I can get the snow off the roof without (1) scraping off a shingle, (2) missing the snow entirely, or (3) breaking a window. So the snow is still on my roof, but my sidewalks are navigable. I can at least take the garbage out back and walk out my front door to the sidewalk… so score one for accomplishment! But moving that snow? That should be cross-training! (Is it, Coach?)

 

* * *

 

Saturday dawns crisp and pretty cold – the kind of day that’s perfect for hunkering down and eating soup. A friend comes in to the city and has some time to kill. She tells me to consider her my Uber for any errands that need doing for the afternoon.

And I have errands!

I’ve got bottles that need to go to the bottle depot, a package to pick up at the post office (since I apparently can’t have cookie sheets left unattended on my front steps)…

And, oh yeah, I’ve got this flooring…

This fall, my Dad and I purchased some flooring for upstairs – I figured it was time to replace it when I could feel the subfloor underneath portions of the carpet, and there was a huge strip of duct tape where Wolfie clawed the carpet to shreds. Dad and I (mostly Dad) got the main upstairs area and one of the bedrooms done, and I hired professionals for the other two bedrooms. The excess flooring has been taking up space in my music room for a month, and I want it out.

I’ve set aside one box, plus the boards from a previously open box – just in case I need to replace anything – then lift and haul six boxes of flooring to my friend’s car. Who needs weights when you have flooring boxes? My friend pushes and directs the boxes in to position in the trunk of her car, and we return them to the store after a quick stop at the bottle depot. My music room seems almost empty now, but I can now walk to the piano without kicking a big heavy box! And my basement has been cleared of one of its sources of doom.

 

January 13-19: “I Just Need this one little thing…”

 

I need to find my birth certificate. The place I thought it’s lived for the past several years… apparently doesn’t have the document stating when and where I was born.

But there’s plenty of papers to sort through and what else am I going to do on a Monday night, when the windchill is hitting -40?

The papers have lived in the music room for a while now. And I am itching to sort them, if for no other reason than I need something, and this is the most likely place to find it. With a combination of apps, I make steady work out of a 6-inch thick stack of papers – some of it important, much of it not. I’ve whittled down six inches of paper and a functionally disorganized briefcase-esque filing “cabinet” into stuff for the house, stuff for Annie and Jenny, stuff for taxes. The rest goes in to recycling, and my hundreds of pages have been whittled down to an organized little pile of paper happiness (two inches, tops, including a binder).

But I still don’t have my birth certificate

 

* * *

 

This week has been cold. Unquantifiably, you should really stay home, cold! I had a non-specific cold/bug thing on Wednesday but realized my office was warmer than my house, so I worked all day and went to bed early that night.

The cold finally starts to break on Saturday. I’m back outside, shoveling my back pathway. I cannot shovel in a straight line to save my life… but again I have a clear-ish path to the garbage cans. My front walk and steps have been taken care of – what took me 20 minutes last week took Ed less than three while waiting for me to get ready for Run Club on Thursday. I may never get the hang of this shoveling thing!

There’s a wooden box in my bathroom. It’s a hold-over from my childhood, but for as long as I can remember it’s held various toiletries and body washes and the like. it takes me five minutes to pry open the latch – which gives you a pretty good idea how long it’s been since I last opened it. I take everything out, throw it into a garbage bag, and wipe it down. Mission: accomplished!

I’m just putting the box back into position when I notice – not for the first time – the vent cover behind it. I don’t think I can remember a time when that heating vent has been covered. The cover has just sat in front of the vent, allowing hot air to make the bathroom one of the most luxuriously warm rooms in my place. The drywall surrounding the vent is… crap. There’s no nice way to put it. I hold the cover up to the vent, cross my fingers, and get to work, because by God that vent will be covered today!

I start by scraping paint off the back of the cover. I start with my nails. I use water. I use a bit from a screwdriver. I use cleaner. Finally, I find a screw and use my handy-dandy screwdriver to push it through a tiny hole. Great! Now what? how am I going to get this cover to stay in place when the drywall around it is flaking off in my hands?

Get bigger screws.

It’s not pretty, it’s not straight (it’s only about 1/8″ off-center), but the long screws are screwed at odd angles into…. something. That vent is now covered. I sweep up the drywall, and do a happy little jig into my kitchen.

I just want to clear out the cupboard above my stove.

That’s literally the only thing I set out to do. I don’t think it’ll be too bad – I’ve done little bits of this off and on for the past little while – but I haven’t stood on a chair and reached in to the back and made sure there’s no growing or hardening things in the recesses of the cupboard.

I throw out an aged open box of Golden Grams, and some oatmeal I bought once upon a time with good intentions of eating more oatmeal.

It’s then that I realize the cupboard is gross, and needs a good wipe down.

So I grab a spray bottle and a cloth and get to work.

And it turns in to more cleaning and scrubbing, as the Edmonton Oilers play a high-scoring game against the Arizona Coyotes.

The stove cupboard is just the beginning. I move on to the next cupboard to the right, and start wiping down shelves. I reorganize it so that I can reach everything – because the old storage system wasn’t set up to be reachable by anyone shorter than six feet tall. All the wineglasses and shotglasses and bottles of booze all live together in harmony, all the Instant Pot accessories live with the Instant Pot… and so on. As I organize, I can feel little pieces of myself get put back together.

Then I reach up above the cupboards, wipe the surface as best I can (I need to find my stepladder to get to the back), and throw out everything that’s been up there collecting dust and grease and God knows what else for the past who knows how long.

I’m not sure when the anger hits, but it’s there. It’s red hot and present and intense. I’m angry that I’m dumping out perfectly good Captain Morgan. I’m angry that I’m able to use my fingers to write my name in the dust above my cupboards. I’m angry that it’s been allowed to get so bad that I don’t remember the last time I wiped out the crud from the lazy susan that holds my glasses and mugs.

On the plus side? I now have a clean and organized kitchen, and I found my big tall mug with the orange and white cat on it… the one I swore I lost at a job I was laid off from five years ago…

And I’m glad I’ve done all this today.

 

 

January 20-26: All the Little Pieces

 

It’s a hard week. The cold weather has broken after a week and a half of clasping the city in its frigid grip. I have little energy, and am exhausted preparing for – and then testifying in – my first (and hopefully last) Human Rights Tribunal. But I’m able to get a few things done. On Monday, I move the last of the spare flooring into the furnace room, and start to organize other items into groups. Once I have more energy, I’ll do more, but at least I have something done.

Saturday, a bag of kitchen items is donated to the thrift store. I sort through the odds and ends in my bathroom – throwing away more old things, organizing what’s left – and giving it a good clean. Then I decide to sweep, and am once again reminded how much I suck at it. More than one person has suggested vacuuming as a way to keep my floors clean. In a day or two, I’ll give it a try – anything’s better than what I’ve got now – a tall and unwieldy broom, a short useful broom for some spaces, and a hand-broom that broke in half when I tapped it to loosen the animal fur from its bristles.

On Sunday I notice that Annie’s thrown up a hairball on my living room curtains – something I’m noticing more these days. A friend helps me take the curtain rod down, and I take the curtains downstairs to wash. Once they’re dry, I put them on the curtain rod, standing on the couch so I can put the rod into the brackets. One of the end pieces doesn’t fit quite right, and I can’t tell if it’s always been that way or if I’m just useless at tightening things while my hands are above my head.

Then I notice the shelves.

They’re coated in dust, dust so thick I can write my name on them with my fingers. I take everything off the shelves and sort them into piles of things to donate, things to keep and things that I’ll deal with when I have the emotional energy.

I’m thrilled I’ve found things that I haven’t thought of in years – like the music box I’ve had for as long as I can remember. The top has a cat and a fiddle, and the base shows tactile representations of all the other lines in the song. I spend a long time dusting it off, then set it on the hutch – the same place it sat when I was growing up – and turn the dial so that I can hear the song.

It plays slowly – much more slowly than I remember. As I stand and listen, I’m hit with intense waves of sadness and rage. I don’t know if I’m sad or angry that I forgot all about this music box even as it’s sat in my living room for a decade. Why did we put it there, rather than on a place it can be picked up and enjoyed? Am I grateful or angry that I’ve got a belated opportunity to purge and cleanse and get to know my home? What the hell am I going to do with my wedding photos? Why didn’t I take more pride in this place before? Is it too late now, am I fighting an uphill losing battle?

The dish ran away with the spoon… and I am so done. The rage and the helplessness and the anger all come gushing out into a wave that I seriously think is going to drown me.

And for a while, I let it.

 

 

January 27-31: Putting It Back Together

 

For the next few days, I’m a wreck. I can’t even get behind the everyday things that need doing. Dishes pile up in my sink, I’ve got a small load of laundry that needs folding. I don’t want to run, I don’t want company, and I certainly don’t want to talk about it.

On Monday after work, I therapeutically bake a batch of muffins – if for no other reason than the milk will go bad if I don’t use it. I pour a teeeeeeeny bit too much whiskey into the coffee I enjoy with my freshly-baked muffins. I start reading a trashy book that interests me in the beginning and then frustrates me with its implausible premise – which is when I know I’ll be OK.

Why I decide to re-reorganize the hall closet on Tuesday? Beats me! Maybe it’s because I have more space. Maybe because I don’t remember the last time it was organized completely. or maybe because most of the organizing was done in September, and it was a job I could complete with minimal effort but maximum results. Maybe all of the above. I spend half an hour sorting and reorganizing – all the towels and cloths on one shelf instead of the two they’ve occupied for nearly a decade. Pet stuff on the next shelf up – dog stuff on the right, cat stuff on the left. Various extra staples – paper bags, freezer bags, Kleenex, packing tape, light bulbs, etc., etc., etc. on the top shelf. The cubby underneath the bottom shelf is emptied of its contents and sorta swept with the broken hand-broom, and now all there is under there is a big bag of dog food.

I feel accomplished.

I feel better.

And I feel like my place is a bit less cluttered.

I know I have a lot of work ahead of me – tonight I plan on chipping away at the blocks of ice in my back yard – and I know January’s been all disorganized and kinda wobbly. Maybe February is when things will start to come together, when I start to form a more concrete plan of organization. But as far as January’s concerned…. this blind lady got sh*t done!

Blind Lady Gets Sh*t Done: Laying the Ground Work

16 Thursday Jan 2020

Posted by blindbeader in Blind Lady Gets Sh*t Done, blindness

≈ 6 Comments

Tags

goals, learning lessons, personal, reflections

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Life seems to have a way of changing us, and teaching us lessons along the way. Sometimes you’re forced to grow, sometimes you can choose to learn. Sometimes you start a thing and you realize along the way that you’re not the same person you were before you started.

I’ve been an adult for almost half as long as I’ve been alive. Over the years, I’ve rented apartments (alone, with a roommate, or with my husband), and have been a partial homeowner for nearly a decade. I’ve been out from under my parents’ roofs since I up and moved to Edmonton more than fifteen years ago. But if I’m completely honest with myself, I must acknowledge I can get by on my own… but I haven’t been as self-sufficient as I’ve told myself I am. That’s a bitter pill to swallow. It’s only been recently that I realized I spent a long time living in a house where – often times – things just didn’t get done. This is not a negative judgment, an assigning of blame, a falling on my sword. The reasons for this pattern are not important, it is simply a fact. Things just got let go.

And I’ve hit a point – and a stage in my life – where if I want something done, I do it myself. Because I’m the only one that can change how things are, so if I want things to be different, I’ve gotta make it happen.

I’ve been living on my own – for the first time in over a decade – for nearly six months, and I’m in a position to be able to make this house my home. I’ve always claimed it as my home, and it is, but I have felt I need to make the changes – big and small – to not just make it my home, but welcome others to it, too. It’s overwhelming – my place isn’t small, and needs a lot of work – but I have abdicated too much for too long. It’s time I take the bull by the horns and get sh*t done. It will be a work in progress – my house is not going to be a magical showplace. It will be imperfect – heaven knows I’m not the best housekeeper in the world (and, no, it’s not solely because I’m blind). I fully expect to fall on my face, to make mistakes, to just not wanna do this… but the time for changing of long-standing patterns is now.

My goal is to learn stuff, to be productive, to get to know the nooks and crannies of the home that I love. how I’ll get there is to tackle one non standard/maintenance project every week for 2020. It doesn’t have to be a big thing – in fact the big things usually are the strongest motivators – but it just has to be a thing that isn’t something that needs to be done on the regular, like laundry or dishes or whatever.

It’s taken months for this goal to take shape. This past fall, when I was cleaning eavestroughs (while my father held the ladder), washing the fridge, cleaning out the hall closet and the pantry (while my partner held open garbage bags and took them outside to the big garbage cans as I wiped down shelving)… I realized this place needs a ton of work. It felt so overwhelming, and like I didn’t know where or how to start. Between training, travel, racing, and life, I didn’t stay on top of things as much as I wanted to this past fall, but I was still maintaining some momentum on this front. A little momentum is better than stagnation. And I liked the feeling.

Then January hit, and with it came a burst of productivity. Call it a New Year’s resolution, or turning over a new leaf. It was happening, seemingly without my input. I was getting stuff done in January. Like just getting sick of how things were and quietly making changes. Why not continue? I like how it’s gone… so start a whole new pattern? Make the goal open enough to be flexible, but concrete enough to see measurable results? Doesn’t research say something about making goals/resolutions/whatever this way?

And as a way to chronicle my journey – the successes and setbacks, the motivation and the lack thereof – why not share my journey in a monthly series of blog posts… because this blind lady’s getting sh*t done! And she’s sure she’s not the only one who wants to be productive on her own terms. She could also use some tips, tricks, and encouragement along the way – no person is an island, and all that.

So, come with me… I’ll be getting dusty, buying stock in vinegar, “cross-training” by lifting things, conceptualizing space, and quite possibly growing up and learning unexpected lessons along the way.

Living in the Middle of the Road

18 Saturday Nov 2017

Posted by blindbeader in blindness

≈ 2 Comments

Tags

advocacy, alienation, anger, comeraderie, defensiveness, learning lessons, moderation, personal

It’s funny, the patterns you see, when looking back. Almost exactly two years ago, I wrote a blog post about how not everything is a fight. Even though they were absolutely right on this count, the person who inspired that post had their own agenda, their own reasons to grind me down. In response to their comments – some that were accurate and some that were cruel – I tried to buckle down, to keep quiet, to not speak out about anything; in effect, I tried to become a quiet little mouse who never uttered a word as it came to perceptions of my blindness. I lost part of myself in the process. I believed most of what this person said – much of it to my detriment – and it took me years to realize that they could be right about one thing and yet still be very very wrong about everything else.

Somewhere along the way, I’ve met some amazing people who’ve helped me become a strong and forceful disabilities advocate. They are compelling and fearless and take no prisoners. I owe a great deal to them, for their willingness to stand up for people with a wide variety of disabilities – not just the unique challenges and triumphs their own disability(ies) present. They’ve made me feel welcome, and since then have encouraged me to share my perspective and kindly corrected me when I made mistakes that hurt them.
And yet, in between those two extremes, is the middle of the road. In many ways, I’ve found myself swerving from one extreme to the other, using bravado and force to overcompensate for the pain of passivity, of having my face shoved into the shoulder of the road.
Recently – and it’s not the first time – a loved one told me that I shouldn’t be upset when someone is surprised that I hold the job I do, and chooses to express this shock with sickly-sweet tones that one usually only hears directed at very young children. This was on top of a bunch of other little things that made the whole day just go sideways, even if nothing itself was earth-shakingly bad. To be honest, I’m still reeling from the comment itself, and the later understanding that I’ve been overloading a loved one with too-frequent complaints about how people respond to my blindness. They have the luxury to decide whether or not to hear about it; but it is such an integral and frequent part of my day that I don’t think twice about sharing it. In the moment of impact, it just didn’t feel fair.

But is it really unfair when I am expecting them to help carry my own burden for me when they’re not willing or able to do so on a regular basis? If I expect understanding from others, should I not offer it in return?

I chose to take that hurtful comment and seek out some self-reflection with the help of trusted friends. As of right now, however, I have no easy answers.
Have I been angry?

Yes.

Have I had cause to be angry?

Yes.

Do I expect others to be angry on my behalf?

If I’m honest, yes. Because I highly doubt they’d put up and shut up about being denied opportunities, infantilized, bodily manipulated, and underestimated on a very frequent basis.

Is that reasonable?

I don’t know.

Is it reasonable for friends and family to not want to hear about it all anymore?

I don’t know. I can’t choose to ignore it all, but I can choose when and with whom I open up these dialogues. It is my responsibility to be considerate and not over-burden loved ones with my own emotional baggage, no matter how reasonable and justified the baggage is. But it is also theirs to remember that no one likes their bruised feelings and interpretation of events dismissed out of hand, especially when they’re releasing some pent-up tension, as we all do.

Is it understandable for frustrations to boil over into a lack of empathy, cruelty and harsh words?

Yes, on both sides of the issue.

So what does this mean for me?

I don’t know.

 

My blog May look different in the coming weeks or months. Maybe I will take a break. Maybe I’ll do something radical and remove myself from disability spaces. Maybe I’ll do none of these things. Maybe I’ll do all of them.

I doubt I will ever be content sitting on the sidelines long-term, because allowing others to speak for me will limit my own opportunities, and those for the people who come behind me. But I can’t keep swerving between hostile aggression and docile compliance, because neither accomplishes anything. And I can’t keep coasting through, keeping my head down, allowing my presence alone to be an example, because where I am and what I do are only part of my story.

So I’m going back to the proverbial “driver’s manual”, to figure out the best advocacy “vehicle” for myself and my loved ones. Maybe I change what I say and how I say it. Maybe I choose my battles more carefully. Maybe I emotionally check in with my friends and family to see if they’re in a space to carry a particular burden with me. Maybe I take some time out to just exist, particularly on days where everything just goes sideways and I wouldn’t respond objectively anyway. Maybe I have all the tools I need, but I need to teach myself how best to use them. I’m not doing anything drastic, nor will I suddenly become a door mat.

But I am so very tired, on all fronts.

And maybe for now – on this leg of my journey – it’s time for someone else to take the wheel for me.

The Epic Road trip of Awesome Day 2: “Is that a Watermelon, or a Tomato?”

13 Wednesday Sep 2017

Posted by blindbeader in Epic Road Trip of Awesome

≈ Leave a comment

Tags

conflict, eating, family, learning lessons, plan B, road trip

Sunday, August 27, 2017
Jenny shuffles around on the floor and lets out a whimper. I bury myself under the blankets, nice and warm, eager for another hour (or three) of sleep.
But Jenny will not be silenced. I check the time on my phone. It’s 5:30 in Richmond, BC, which means it’s 6:30 in Edmonton. My dog… the Labrador alarm clock.
I quickly throw on yesterday’s clothes, swipe a baggie from the roll by the front door, and take Jenny outside to answer nature’s call.
Happy now, Jenny permits me to curl up under those blankets beside my husband, but sleep eludes me. I listen to my audiobook for an hour or so, then hear movement in the kitchen.
My dad is awake, getting breakfast started. He’s amused by Ayce, who has curled up with Dwight on the sofa bed. Both seem pleased as punch, so we try and stay as quiet as possible to let them sleep.
One by one, we all wake up and help with breakfast. Whether it’s grabbing food items from the fridge or freezer, cubing cheese, prepping coffee, or using the stove, most hands are on deck. While breakfast is cooking, Ben, Sarah, Dwight and I sit on Dad’s back porch, watching Jenny demolish two sticks in the span of fifteen minutes and then decide that one of Dad’s bushes needs “pruning.”
We gather around the dining table, realize there’s not enough coffee, then someone goes to make more. We eat our fill of an everything-but-the-kitchen-sink breakfast and make plans for the day.
Dad and Karen head off to church, and the four of us have the house to ourselves. It’s nice to have some unstructured time. We read some, chat some, and head down to Steveston for a walk along the boardwalk, some shopping and some coffee.

We pull up to a parking meter that won’t take our cash. Sarah buys three hours worth of parking, and Dwight and I stand by the car, our faces toward the sun. One of us makes a comment that, unlike up north in Edmonton, we can look toward the sun without it hurting our eyes, allowing us to leave our sunglasses behind.

We stop in a souvenir store where Ben buys a magnet that has a joke about financial responsibility being unimaginative. There’s a consignment clothing store down the block, so Sarah and I step inside, generally dragging the guys along for the ride. A unique dress catches my fancy, and I end up spending far too much time (according to Ben… okay, me, too) trying on clothes. Unfortunately, nothing fits quite right, so I leave empty-handed.

We’re all a little hungry, so we make our way to Blenz, a coffee shop my dad visits frequently. After purchasing our drinks, Dad and Karen meet us and we sit outside where we chat and enjoy the beautiful day.

Our stomachs are rumbling, so we walk down to the Buck & Ear. It’s a sports bar that doesn’t feel like a sports bar. We crowd around a table and devour our sandwiches, salads and (in my case) fish tacos. Dad and Karen generously treat us, and we head back to our cars.

When we pull in to Dad and Karen’s carport, Sarah exclaims, “Is that a watermelon… or a tomato?” Karen’s been growing tomatoes this year, and this one is massive!

Jenny and I make our way inside, where Jenny promptly empties Ayce’s toybox of all the toys we’ve put away and settles on the loudest toy in there – the squeaker ball. Ayce decides that barking at her doesn’t phase her, so he toodles out the doggie door and ignores her instead.

Dad and Karen have recently returned from a trip to England and Sweden. They have brought souvenirs home with them (like tea from a teashop, Swedish dark chocolate, prints of trains for Ben). In addition to my no-tattoo-allowed generous birthday gift from Dad and Karen, I open a wooden box to store my newly-acquired tea, and a bracelet my father made that jangles every time I move my arm. For reasons both spacial and practical, we leave the tea and the box behind because we’re not sure about space in the car, and we’re equally not sure if we can take them (the tea in particular) across the border. We thank them profusely, then settle in for a post-lunch nap.

It’s hard to describe how things go south. Ben and Sarah had made plans to meet their family friend – their “uncle” – in the afternoon, and my mom was going to host us for dinner in Abbotsford at 5:30. I start to get anxious when Ben and Sarah haven’t left and it’s 3:30; I hope they have a great visit with their uncle, and there’s someone coming to dinner at Mom’s that I haven’t seen in years. There’s no reason we couldn’t do both, right? They take off, and I load up the roof bag for a quick load-and-go.

I don’t handle this well. I send texts, I pace, I get angry. I make watermelons out of tomatoes. Dad offers to drive me over to Mom’s and I tell him that’s not his responsibility. When Ben and Sarah arrive back at 5:45, I am fuming, and so is Ben. Ben, Sarah and I meet on the back patio. We make our feelings and expectations clear, and nothing really gets resolved. We load the roof bag on to Hoshi, put Jenny in the back seat, and hug Dad and Karen goodbye.

 

Richmond, BC – Abbotsford, BC

Distance: 67 km

Travel Time: 1 hour

 

For me, it’s a tense drive to Mom’s place. We make it there by 7:00 PM, and we climb out of the car. Mom greets us, smiling. It’s quiet and peaceful here; you’d never know that you’re not too far off of a major roadway.

I expect Jenny and Max – mom’s Bouvier – to pick up their intense doggie love affair where it left off last year. Jenny has other ideas; there’s SO much to explore!

We get a tour of the property, Jenny and Max generally leading the way. Jenny is fascinated by the chickens, though she makes no move to do anything about them. When we walk past the barn, Jenny discovers the blackberry bushes, eating only the ripe berries and wagging her tail merrily. Mom tells us they’ve had coyotes in the area, so after dark I plan on keeping Jenny close.

The makings for pulled pork sandwiches and potato salad sit on a folding table behind the house. A cooler is well-stocked with beverages both alcoholic and carbonated, and we sit outside and eat and drink and chat with Mom and her partner (who, among many other things, was a chef in a past life).

Mom has a tent that she offers to set up for us so we don’t have to set up the one we’re borrowing. we take the roof bag off of Hoshi to get our backpacks and sleeping bags and start blowing up air mattresses…

And they won’t all fit in the tent.

Ben and I have a double air mattress, we bought Dwight a single, and Sarah has a mat. They will not all fit in the tent, no matter what we try.

A team meeting is called. The only viable option is for one of us to sleep in the car. With Ben and Sarah driving, we all agree that they need the flat horizontal surface in the tent. It’s down to Dwight and me. Dwight says this is a great adventure, and besides, he can sleep anywhere. I feel a pang of guilt, ask him if he’s sure.

I toss him a pillow.

While the guys are getting ready for bed, I get a chance to take Sarah aside. We rationally air out our feelings from earlier and bury the hatchet. The awkwardness for me is gone, and I’m glad of it; I can sleep better tonight.

I crawl into the tent with Jenny, Ben and Sarah. We can hear distant calls of coyotes and far-off road traffic. I hope Dwight is sleeping well in the car as I drift off to my own peaceful sleep.

Book Review: No barriers

31 Thursday Aug 2017

Posted by blindbeader in Book reviews, Nonfiction

≈ 2 Comments

Tags

adventure, blindness, growing, learning lessons, mountains

Several months ago I reviewed Erik Weihenmayer’s first book, “Touch the Top of the World.” When I learned his second book (and continuation of his autobiography), “No Barriers“, was coming out earlier this year, I snapped it up quickly, and read it just as fast.

No Barriers: A Blind Man’s Journey to Kayak the Grand Canyon
By: Erik Weihenmayer

Erik Weihenmayer is the first and only blind person to summit Mount Everest, the highest point on Earth. Descending carefully, he and his team picked their way across deep crevasses and through the deadly Khumbu Icefall; when the mountain was finally behind him, Erik knew he was going to live. His expedition leader slapped him on the back and said something that would affect the course of Erik’s life: “Don’t make Everest the greatest thing you ever do.”
No Barriers is Erik’s response to that challenge. It is the moving story of his journey since descending Mount Everest – from leading expeditions around the world with blind Tibetan teenagers to helping injured soldiers climb their way home from war, from adopting a son from Nepal to facing the most terrifying reach of his life: to solo kayak the thunderous whitewater of the Grand Canyon.
Along the course of Erik’s journey, he meets other trailblazers – adventurers, scientists, artists, and activists – who, despite trauma, hardship, and loss, have broken through barriers of their own. These pioneers show Erik surprising ways forward that surpass logic and defy traditional thinking.
Like the rapids of the Grand Canyon, created by inexorable forces far beneath the surface, No Barriers is a dive into the heart and mind at the core of the turbulent human experience. It is an exploration of the light that burns in all of us, the obstacles that threaten to extinguish that light, and the treacherous ascent toward growth and rebirth.

Continuing the Journey, with New Friends along the Trail

This book re-introduces us to key people in Erik’s life – his father, his siblings, his wife and daughter. We get to know and see some of their dynamics play out, discover their demons some kept at bay (and later taking over), grow and change with everyone. One thing that the author has done well – in both books – is balance interpersonal dynamics without verging far into sappy emotional supposition or stale dialogue re-creation.
In addition to getting re-acquainted with Erik’s family, we meet new key people in his life. We meet his son, who is sweet and precocious and is too young to express his grief at being taken far away from the only life, country and culture he’s ever known. The challenges of culture shock when adopting a child from a foreign country (and the bureaucracy that goes with it can almost be felt by the reader; I can only imagine what it felt like going through it at the time. And so many people were instrumental in building this relationship – on both sides of the world.
We also meet other disabled people – from sheltered blind children who learn they were capable of doing more than they thought possible, to veterans who struggled through their own mental and physical barriers to climb mountains, to doctors and adventurers and entrepreneurs and bureaucrats and kayaking guides… Erik’s books are always about people; I never once came away with the idea that Erik was this big hot shot who’s done all these cool things, but he had others with him every step of the way.

A Few Too Many Rabbit Trails

Unlike “Touch the Top of the World”, “No barriers” is a long book with many components to it. We travel up a Tibetan mountain with blind teenagers, learn about the BrainPort (a nifty piece of technology that produces visual information on the wearer’s tongue, laugh and cry at the journey of creating a new family, experience the merger between two nonprofits and the pitfalls along the way… it’s all useful and important, but at times I just wanted to get back to Erik’s journeys as an adventurer – climbing mountains, kayaking rivers – or reading more about his family. “Touch the Top” was a much tighter and more cohesive read, but I do understand why all these components were included, to describe a journey of peaks and valleys, of falling down and getting back up again.

Seeing the Forest for the Trees

One of the most profound experiences in the book is not when Erik kayaks the Grand Canyon (though that experience is well-described and riveting), but when he trains and takes a small group of blind Tibetan teenagers and their guides to Tibet’s tallest mountain. Erik is put in touch with Sabriye Tenberken, a blind German social worker who founded Braille Without Borders, a school and training center for the blind of Tibet. Eventually they decide that, both as an educational experience for the teenagers and as a way to break down barriers placed on them by Tibetan society, a mountain climbing trip is in order. Erik is a goal setter – he has a plan, and he is going to achieve it, making adjustments along the route but with the understanding that achieving the goal (in this case, climbing the mountain) is the most desirable end result. But when threatening weather adds further danger to this trek, Erik and Sabriye have vastly different opinions on whether or not to proceed.

Sabriye, affter thoughtful consideration, tells Erik that she has taken what he’s told her to heart, that she needs to respect the mountains and their beauty. She tells him bluntly but kindly that she’s noticed the sound of the wind in the trees, the feel of the glaciers, the stillness of the air. She has done what he’s asked, to appreciate the mountains for all that they offer, but it’s his turn to do what she’s asked and respect their people enough to acknowledge that they’ve already done more than they could’ve ever imagined, and now it’s time to keep them safe.

I read this book months ago, and Sabriye’s idea (though paraphrased here) has never left me. Goals are important, but sometimes we focus so much on the end result that we miss the little things along the way.

Conclusion

This book is well worth your time – at a sprawling 480 print pages and more than 19 recorded hours, it will take a lot of it. It’s profound and moving in ways I didn’t expect. That being said, some passages could have been shortened for a more cohesive read.

4/5 stars.

When smoke Gets in Your Eyes

27 Sunday Sep 2015

Posted by blindbeader in blindness

≈ 8 Comments

Tags

camping, guide dogs, learning lessons, perception, perfectionism

This past weekend, I had the opportunity to go “Fall camping”. For those who have never been (like me), it’s exciting and fun… except for the fact that you need to pack gloves, extra socks, toques (warm hats), realize that it takes forever to get a fire going, and layer up your blankets, because by gosh it gets COLD!

I loved it.

But the experience taught me some pretty startling truths – some humorous, some not so much – about my perception of myself, my own expectations, and how sometimes everything going to hell is just what you need to smack you in the face and get you back on track.

Let me preface this by stating that the trip was NOT a complete flop, and not even a bad trip. Just enough things went just sideways enough to make for some great reminiscences for the next camping excursion. Ben and I got to the camp site right on time, after a minor detour to the wrong campsite on the far side of the canal. Unfortunately, pulling in to the wrong campsite – a heavily treed area – signaled to Jenny that yes, yes yes, this was a PARK and this would be FUN, and let’s start whining the WHOLE rest of the way to getting back on the road and on route to our correct campsite. Thankfully this whining thing stopped until we literally pulled in, and she let out one plaintive yowl… and proceeded to hop out of the car and sniff all the trees and bushes within a ten-foot radius.

Our friends had been there for a couple of hours, had tried (unsuccessfully) to catch fish for dinner, and spent thirty minutes to get a campfire going. For some reason, the fly on our tent wouldn’t cooperate, so it took all four of us to actually get the thing assembled (this is what happens when you go camping less than once a year). We sat around the fire, but no matter what direction the wind blew, which chair I sat in, the smoke kept blowing in my face. Thankfully this doesn’t bother me too much, so I just rolled with it, drinking strong coffee and attempting to keep my already cold fingers warm. Jenny started shivering almost immediately, and was ecstatic to be able to lay on her bed on the cold ground. We enjoyed steaks, potatoes, and Greek salad for dinner, then donned extra socks, gloves, and/or sweaters and chatted around the campfire, complete with funny stories, whiskey, and beer, until one of the lanterns went out (about 11:30). Ben and I retired to our tent, and our friends headed to their camper…

Whoever can successfully change into their pajamas in a 2-person tent with their spouse and their dog inside it should get some kind of award. I can say this because I’ve successfully done it. Now, try telling said dog that yes, it really and truly is warmer under the spare blanket, NOT on top of it… one of those useful things they didn’t teach you at guide dog school. Repeat this three times during the night, lose your toque somewhere in your tent and wake up with a frozen nose, realize at 6:00 AM (while your dog has to pee) that your air mattress has a leak in it, and you’ve got a pretty good idea about the awesome time that was had by all in the Lang tent. No word of sarcasm… we had a ball… especially when Jenny woke up at 6:00 AM, wagging her tail against the side of the tent and giving Ben a tongue bath to wake him up; we laughed uproariously, making our friends wonder what in the world was going on just a few feet away from their camper.

The water at the pump had a sign on it that it wasn’t suitable for drinking, so we went into the nearest town (about half an hour away) and filled up on water, gasoline, and coffee. Jenny did terrific guide work in the restaurant, despite the fact that I didn’t have her regular harness with me, and we had to explain about six times that she is a service dog. Thankfully, we had our coffee in peace, filled up our water bottles and our friend’s Jeep’s fuel tank, and back to camp we went.

At this point, Jenny still thought that camp was the biggest off-leash dog park EVER. Her only exposure to wooded areas for the past couple years has been at off-leash or multi-use trails, and the trees and bushes and ground at camp all smelled SO AMAZING. Little matter that I was telling her to do something guide dog related (or even not guide dog related); listening was apparently optional. My city dog just wanted to get out her mojo. So we stuck a railroad spike into the ground, clipped her leash to it, and let her sniff around camp. This pleased her for about fifteen minutes… until she wanted her bed again – close to me, but far from the fire, please.

The fish weren’t biting. And the new campfire was taking forever to light. And the barbecue Ben was using slipped and fell off the picnic table, spilling a sizable chunk of bacon on the ground. Thankfully, we had enough bacon in the cooler – and eggs and Greek salad in the ice box – to make a terrific lunch. Undaunted, our friends wanted to go further up the canal to see if the fish were biting there, and I wanted to take Jenny for a hike…

But Jenny had other ideas. She didn’t get the memo that I had this awesome hike planned for us. Wouldn’t it be fun? No no no no no! It’s GRASS!!!!! And what do I mean that I want her to stay on-leash? This looks like a dog park! And not pulling? Pffffft. She’s off-leash at the dog park and doesn’t understand why I’m not happy. We spent the next thirty minutes like this, in a heated power struggle, until we walked back to camp and Ben and I reassembled the tent and loaded up the car. Our friends came back (still no luck fishing), minus a good lure that got caught in a log. As we drove away from a spectacular 24 hours, they were headed back out to give it one more try.

Camping has always taught me many lessons. As a small child and young teen, I was able to get away from the city and explore nature, pitch a tent, think my own thoughts, and just rest in the quietness of a summer night. This experience was wholly different, because I expected in some ways to be that same young girl with skills to assist those who were camping with me, even though I haven’t used any of those skills since I either had more vision or finished grade school… or both. I also expected Jenny and I – true city dwellers) to simply pick up and act like camping and hiking was no big deal, just another fun activity, not realizing that – like building a fire, catching fish, or cooking over a camp stove – it takes skill and practice to become profficient. Jenny and I both lost out in some big ways this weekend thanks to some expectations that I – ever the perfectionist, dreamer, nutcase – somehow got into my head. But we also walked away with some things, too. I’ve got a game plan for whatever remains of this fall, and next spring, to get out into more woodsy areas. Even if we never go hiking as a guide dog team, simply letting Jenny be a dog on leash and her understanding those limits will transfer into a much less frustrating camping trip the next time around.

By the way, I’ll go camping again. Even with gloves, toques (even ones that go missing), no fish, fires that take forever to light, and warm sunshine right next to nearly arctic shade, I far prefer fall camping to summer. You know why? No mosquitoes!

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