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Category Archives: The Empowered Series

The Empowered Series: Celebrate You

16 Friday Sep 2016

Posted by blindbeader in The Empowered Series

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Tags

autism, Celebrate You, family, neurodiversity, pride

I’ve gotten to know my next feature in my Empowered Series, Joshua White, on Twitter over the past several months. We’ve spoken primarily about disability, self-esteem, and ableism. When I saw that Joshua had his own business featuring neurodivergent themed T-shirts, I asked if he’d be willing to be featured on my blog. Thanks, Joshua, for your openness and candor, and answering all of my silly questions.

 

About Joshua

 

Joshua lives in North Carolina with his wife, two children, and four cats. He describes his family as “neurodivergent”, and they share many hobbies (among them watching Star Trek and playing Minecraft).
Fifteen years ago, at the age of 21, Joshua was diagnosed with autism. Prior to his diagnosis, he was not provided with supports in the public school system and completed his high school with the Commonwealth Challenge (a program led by Marine and Army drill sergeants). After several years struggling to find a way to make it on his own, Joshua moved to North Carolina with his wife and her children. He is now studying social work in college and running his T-shirt selling business, Celebrate You.

 

About Celebrate You

 

Celebrate You is an online shop that sells neurodiversity themed merchandise as a way to raise awareness about what neurodiversity is, as well as providing a visual reminder that neurodiversity doesn’t mean “bad”, just “different.” Using t-shirts is a public way for those with neurodiverse conditions to show that they are proud of who they are, and hopes to foster understanding with a neurotypical community that can sometimes view neurodiversity as something to be hidden or changed or downplayed. Joshua believes that his recent success at college is due to the fact that he learned to embrace his particular learning style (he’s a visual learner and tends to notice patterns that neurotypicals may miss); he believes that once other neurodivergent people embrace how they best learn and function, they can also reach a place of self-acceptance and success in school, the workplace, and everyday life. Joshua says he didn’t have any autistic role models growing up, and he wants to use his shop as a way to not only support his family, but to show his neurodivergent son that autism in and of itself doesn’t hold him back.

 

How it Works

 

The designs are brain-childs of Joshua White and his friend Chelsea Yarger. Joshua uses an open source imaging software called GIMP to design logos, and uploads them to the Celebrate You shop. The TeePublic web site hosts his online store and then prints and ships the purchased products to customers.

 

What’s Next?

 

Joshua would love to be able to finish his Batchelor’s Degree at Appalachian State and move his family to Boone, North Carolina. He hopes to continue to raise awareness and pride among young neurodivergent people – something he never had – and help support his family. He is overwhelmed by the support and encouragement he has received and hopes the support will continue, not only for himself, but to spread the message that neurodiversity is nothing to be ashamed of and can even be something of which to be proud.

The Empowered Series: Alberta Service Dog Community

15 Friday Jul 2016

Posted by blindbeader in The Empowered Series

≈ 1 Comment

Tags

access, advocacy, ASDC, community, disability, service dogs

Samantha Hjalmarson (Sam), my current feature for The Empowered Series is someone who hasn’t started a business or a nonprofit, but a community that empowers, encourages, and connects others. I had an opportunity to meet her a few months ago. Both of us have service dogs (though for different disabilities); at our meeting, her dog was much much better behaved than mine (due to Jenny’s cat-litter consumption). In response to her disability, Sam spearheaded and almost exclusively runs the Alberta Service Dog Community, but she’s reaching for different heights as well. And who would want to say no to cute puppies?

 

About Sam

 

Sam developed fairly severe PTSD after years of abuse by her stepfather, though she didn’t realize it for many years. After high school, she joined the military as a signals operator, and the PTSD along with Generalized Anxiety Disorder started causing problems with her ability to cope. After her three year basic engagement was up, Sam left the military primarily due to her mental health (though there were other reasons). Things were manageable until a car accident put her in the hospital for a few days, then left her bed-ridden for weeks after and then it all started going really downhill. PTSD and Generalized Anxiety Disorder (GAD) have manifested themselves in agoraphobia; Sam spends most of her energy on managing stress levels, and sometimes even leaving the house is a challenge, making work outside the home impossible. One employer after another fired her; even though Sam worked productively when she was present, she couldn’t consistently be at work every day. Eventually she went to a therapist and was diagnosed with PTSD. It eventually hit the point where she was unable to work at all, had to fight to get onto AISH (“another long story by itself!”) and wound up with a Service Dog to help her out.
Sam’s hobbies include making chain mail, finding meditative benefit from baking and cooking. She’s a massive geek, “like Dungeons and Dragons roleplaying level geek”, video games, fantasy books and TV. She enjoys amateur photography and is a cat person (“Honestly if we could have service cats instead of service dogs I would be all over that.”)

 

About ASDC

 

Alberta Service Dog Community (ASDC) came out of Sam’s desire to be a productive member of society. Being on disability and taking money from the government left her feeling like she was being a drain so she really felt that urge to do something to help other people. While Sam’s search for a service dog went quite smoothly most people don’t have that same experience. She was lucky, extremely lucky, in that not only did Hope Heels give her a service dog but she also met a group of women who have turned out to be an incredible support network and some of the best friends she’s ever had. Hope Heels went on a hiatus (it’s currently up and running again) but those friendships remain.

Disabilities like Sam’s in particular, but others as well, can be isolating and lonely. Sam wanted to create a support network like she had, so she started ASDC to bring members of the community together. People who get service dogs from schools and programs often have that built in but owner trainers don’t. ASDC isn’t specifically FOR owner trainers, anyone is welcome, but Sam thinks they benefit the most from it, removing the isolation and creating a support system for each other. Much of the discussion and support is virtual (through facebook), but occasional training dates, coffee meetups and other activities are coordinated to get the group together.

 

More than a Support Group

 

The ASDC mandate is education and advocacy. People who want to get a service dog are educated on some of the ways they can go about that and about the laws that would protect their rights (there are two in Alberta, the SD Act and the Human Rights Act). The public is also educated about those laws, what service dogs are and the rights of Service Dog Teams.

Advocacy is another big piece of what ASDC does. Not everyone who faces an access challenge with their service dog has the ability to stand up for themselves and their rights so ASDC offers to do that for them. ASDC can provide advice on self-advocacy, or will contact a business or other entity on behalf of someone if they cannot advocate for themselves. “People with disabilities need less obstacles in their lives, not more.”

 

So what does Sam… Do?

 

Sam is currently the jill-of-all-trades at ASDC, receiving phone calls, answering any questions that come to the main page, posting the majority of articles, and stepping in to resolve an occasional conflict. Currently, her biggest role at the moment is representing ASDC on the technical committee to develop a National Standard for Service Dogs in Canada. The hope is that this will be adopted across the country and will make it so much easier for owner trainers to be legally recognized and protected, in addition to making service dog standards and access rights clear and consistent across Canada.

 

What’s Next?

 

In the future, Sam hopes to incorporate ASDC as a charitable foundation, but at this point “it’s a lot of work!” She also hopes to build a website to house resources, educational pieces, a list of trainers who can help people train their own service dogs, a list of schools that service the area. Eventually once the National Standards are completed and implemented, she hopes to do a series of videos explaining how to train for the points required to meet those standards. About the future Web site and access challenges: “Pretty much anything you can imagine someone wanting to know about Service Dogs or what to do with one I want up on that website, including a link for businesses telling them when they are allowed to ask a handler to remove the dog. I think that if a business feels secure in their ability to protect themselves then there will be far fewer access challenges.”

 

Conclusion

 

There is more than one way to contribute to society. For many of us, it’s holding down a job and contributing to the economy. If that’s not possible, it’s important to find another way. Sam has created a lively community of service dog handlers from across the province while simultaneously providing support to those who need a place to turn or a question answered. Thanks, Sam, for being “chatty” (you made this post SO easy to write!)

The Empowered Series: Electric Marshmallow Productions

15 Wednesday Jun 2016

Posted by blindbeader in The Empowered Series

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Over the past few months, I have followed Dominick Evans on Twitter. He’s created some thought-provoking conversations on the role of disabled people in media, representation of disabled actors in film and on TV, and the idea that Hollywood produces films that perpetuate the idea that it’s better to be dead than disabled.

 

About Dominick

 

Dominick lives in the metro New York City area with his partner in life and business, Ashtyn. He has Spinal Muscular atrophy, a progressive neurological disability, and lives with OCD. To navigate the world, he uses a wheelchair which currently is in need of repair. OCD presents its own challenges with concentration, but that makes working from home an ideal setup. In 2014, he graduated from Wright State University with a BFA in Motion Picture Production, and has a strong desire to direct. Dominick is Polish-American, left-handed, and has “actor” and “singer” listed on his resume.

 

About Electric Marshmallow Productions

 

Electric Marshmallow Productions is a writing and editing business with a branch in film and video production. Dominick and Ashtyn both write and edit contact for large corporations and small businesses alike, with Ashtyn doing much of the writing and Dominick primarily editing content. Disability activism is both a personal and a professional interest, as is activism in the LGBT community.

 

What’s Going On and What’s Next?

 

As part of Dominick’s film work, he moderates a frequent Twitter chat called #FilmDis which addresses media portrayals, representation and hiring practices of people with disabilities. Most recently, he has helped to start a conversation about the recent movie based on the book “Me before You”, which he maintains portrays the idea that it’s better to be dead than disabled. In the future, he hopes Electric Marshmallow Productions will operate specifically as a film and television company that changes perception of people with disabilities in mass media and ultimately in the wider world.

The Empowered Series: Abigail Style

15 Sunday May 2016

Posted by blindbeader in The Empowered Series

≈ 2 Comments

Tags

beauty, blindness, disability, perceptions

One of the most interesting things about being a blogger is the ability to reach and be reached by a ton of different people. As part of the Empowered series, meet Stephanae McCoy, owner/operator of Abigail Style, who wishes to use fun, everyday products to show, visually, that blindness does not mean a lack of confidence and/or fashion sense.

 

About Stephanae

Stephanae (Steph) McCoy is a retired 55 year old mother to three grown sons and a ridiculously cute 3 year old grandson whom she’s “just ga-ga over”. According to the Meyers Briggs Personality Assessment she’s a true INTJ who is an introverted, analytical, somewhat judgmental and intensely focused person who follows the rules. If you ask her sons, she says they would probably say she’s a buzz-kill but with a great sense of humor, who loves playing practical jokes on people she’s close to and seeking change especially when someone is being treated unjustly.
Steph’s vision impairment was diagnosed in 2005 after regular vision checkups, which meant that some conditions such as glaucoma were caught early but needed operation. Seven years ago she had “The talk” with a doctor at the Cleveland Clinic, who advised her that even though she did all the “right things”, due to surgeries and extreme myopia, her vision loss was irreparable.

About Abigail Style

Abigail Style (named after the white cane icon Abigail) is an online apparel and novelties boutique whose message is designed to “Improve humanity by changing the way blindness is perceived. All Abigail Style products carry her signature stylish image and fun slogans. Currently the products offered are women’s, men’s and children’s t-shirts, women’s tanks, coffee mugs, tote bags and iPhone 6/6s cases. Artist Jennifer Barrile designed the logo, and Steph created the images to be printed on the products.
Abigail Style has been open for business for a very short time, but in the future the hope is to hire a marketing director, social media strategist, and a stylist, and increase the product line to include posters, decorative pillows, and baseball caps.

Why Abigail, and What got Her Started?

There are so many stylish women who are blind or have sight loss that Steph felt it was time for a fashionable icon to represent them. Abigail is a beautiful image that evokes power, movement, independence, chicness, confidence and success, a woman on the move stepping forward with purpose.
After Abigail was created Steph reached out to her online community to request their input on a name for her. Abigail was chosen as a play on the word “abilities,” and Nightingale (the small bird that’s known for its beautiful song) – since it looks like she is wearing a divine feather dress.”

What’s Next?

Steph wants to see how far she can take Abigail as she believes the sky’s the limit. Blindness or sight loss has always been one of those taboo topics and it’s time to change this. Is it challenging for people who have previously seen to learn how to adapt to sight loss? Yes it is, but a meaningful life shouldn’t be dependent upon having eye sight and she hopes to see the negative mindset on blindness and sight loss diminish.
Once, an eye doctor told Steph that it would be a tragedy for her to learn how to use the white cane when in fact she believes the real tragedy is the shame many people feel when losing their eyesight. Having a visual image that evokes beauty, confidence and purpose is a way to change the stigma surrounding blindness and/or vision loss.

Conclusion

I want to thank Stephanae for being so open with me, and for taking the time to answer my nosy questions!
If you know someone with a disability who runs their own organization or business, please leave me a comment or find me on Twitter; I would love to feature them here. The word “inspiration” is so often used to describe us, but empowerment is what we do for ourselves.

The Empowered Series: Elegant Insights

03 Sunday Apr 2016

Posted by blindbeader in The Empowered Series

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Tags

business, entrepreneurship, inspiration, taking risks

Believe it or not… some people actually do inspire me. As I have made clear to my readers, I am against the idea of people with disabilities in general (and blindness in particular) being viewed as inspirational for simply existing and going about our days. That being said, I DO feel inspired, and empowered, by people who blaze their own paths through entrepreneurship, creativity, and/or empowering others. As such, I am starting a monthly series on this blog – calling it the Empowered series – featuring an entrepreneur or artist and/or business owner who is blind or with other disabilities. Initially, I had planned this for the 15th of the month, but my first featured artiste is expanding her business through a group fund raiser, and I wanted to give her work some exposure…

 

Laura Legendary: Elegant Insights

Laura is the driving force behind Elegant Insights Braille Creations. After the sudden death of her husband only months after their marriage, she received a “worry stone” which had the word “survivor” engraved on it. On the other side, the same word was written in braille. The seed of inspiration was planted, leading to a years-long search for companies that provided brailled products that were also fashionable. Nothing quite fit the bill, so Laura started Elegant Insights five years ago, creating necklaces, bracelets, and charms that incorporated braille words like “love”, “cherish” and “hope”, or a customer can customize their own piece.

 

Scattered Leaves Charm Bracelet

 

A few Fun Facts

– Laura likes beautiful things that sparkle; one of her favorite things to work with is copper because of its shine. She remembers the sight and the “warm glow” of it.
– Not only does Elegant Insights create necklaces and bracelets, but purse charms and cane charms that provide some audible as well as visual style to standard white canes and purses and backpacks.
– One of Laura’s favorite things to do is find new sources for her stones, findings, and components.
– If she had to pick a favorite stone to work with, Laura admits that she’s partial to rose quartz and “anything purple.”

 

How she Does It

Laura has an eye condition called Retinitis Pigmentosa. Right now she does not have any vision, but she does have visual memory, and from a young age she has had a strong sense of fashion which hasn’t changed with the loss of her vision. She sources beads, findings and gemstones from a variety of sources; it’s one of her favorite parts of the creative process. Along with a small staff, she makes all necklaces, bracelets, and charms by hand, using standard jewelry-making tools. Everything is made in-house, including the braille components, and all staff have workshops or workbenches in their homes. Much of Elegant Insights’ business is done online, but a few times a year they are featured at trade shows and conventions.

 

What’s Next?

An opportunity has been presented to be featured through Amazon’s Handmade platform. This will greatly increase the exposure of Elegant Insights Braille Creations. In order to expand to meet the expected new demand for product, a crowdfunding page has been created. The funds raised will go to purchasing extra tools, supplies and findings, and hiring and training new staff. Laura would appreciate any donation or further exposure to help her novel business expand.

 

Even though I have had a hard time with the “inspiration” angle of things, I have a hard time denying that I am inspired by Laura’s creativity, novel products, and willingness to take risks. I appreciate Laura’s willingness to answer all of my nosy questions. Visit her website, support her work, share her insight… and look at all the pretty things!

A purse charm with a sun, moon, and stars motif. The word "Shine" is written in braille

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