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New York Vacation day 3: It all went to the dogs

27 Saturday Dec 2014

Posted by blindbeader in New York vacation

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I LOVE working a guide dog.  Even though I am a good cane traveler, my worst day with a guide dog is exponentially better than my best days with my cane, especially in unfamiliar places.  I need to remind myself of this, even as I realize that we are all – dog, husband, myself – slightly overwhelmed by all the sights, smells, people, and new experiences.  We will get into a groove, and it WILL get better… and it did… culminating in what might be a legendary story for the trip.

One thing that I have noticed while I have been here – and the couple of other American cities that I have been in – is that people will not necessarily reach out and pet Jenny (though I have gotten that), but they will stare at her.  This does freak her out, and ultimately puts me on edge.  It’s just a weird quirk that I have noticed here.

We purchased the New York Pass at a discount months ago, because almost everything we wanted to do was included in the pass, and it would save us a ton of money while letting us do things we might not otherwise wish to fork over admission fees for.  Since Ben and I both love boats, we decided to take advantage of the All-day Access Pass for the New York Water Taxi, but since it was running on a 90-minute schedule we decided not to get off the boat, but just take pictures from the windows and the decks.  We got pictures of the Brooklyn Bridge and the Statue of Liberty, and learned a lot of cool facts about new York City – like if Brooklyn were to break away and become its own city, it would be the 4th largest city in the world.

Me and Jenny at Pier 45

Me and Jenny at Pier 45

Looks kind of like Vancouver's Sea bus, but different

Looks kind of like Vancouver’s Sea bus, but different

The main immigration hub for decades until jet travel

The main immigration hub for decades until jet travel

First transportation after Ellis Island

First transportation after Ellis Island

Brooklyn Bridge

Bring me your tired, your weak etc.

Bring me your tired, your weak etc.

Jenny didn’t like the boat much, which ultimately culminated in our disembarking, going down the dock, and her leading me smack into a door frame.  We had a little “chat” about this, the Halti went on her nose, and on we went to the Intrepid.

The Intrepid was a cool experience, not only because it was, well, the Intrepid, but because they had a completely accessible guidebook.  If I had gone completely by myself, I had tactile maps that would have enabled me to both navigate the museum and learn about the exhibits.  In addition to the tactile maps, there was a pen that I assume read bar-codes in the book, which would let you trace the map and find out where you are, and read you the signs by the exhibits as well.  I have never seen anything so instantly accessible to me in my life, and I didn’t have to even ask for it!  The admissions crew mentioned it to us… I wish more museums had such awesome services!

Facing the bow of the ship

Facing the bow of the ship

The original ship's bell

The original ship’s bell

Super awesome accessible map book

Super awesome accessible map book

After the Intrepid and lunch, we had some time to kill, so we went down Broadway and did some souvenir shopping.  We talked to one shopkeeper who told me the rent for the Subway sandwich shop around the corner – half his store’s size – was $28,000 a month.  Our mouths just fell open!  We couldn’t imagine such high rents for anything!

Since we still had time, we went to Discovery Times Square, where we took a quick look at the Body Worlds exhibit.  I remember when it came to Edmonton, and there were protests and boycots… I can’t remember why, and now that I have gone to the exhibit myself, I don’t understand the major protest fuss… it’s bodies; we all have them, we all should learn about them and what we do to them and how they break down.

Then we got insanely lost trying to find our tour guide for Inside Broadway tours (we did find him).  Tom, our guide, was terrific!  He laughed with us, at us, cracked jokes, did some awesome singing, and even got to say hi to Jenny, who I took off harness at the end of the tour… she went NUTS playing “Doggie for Mayor”.

Jenny with Tom and me

Jenny with Tom and me

The show we're seeing on Tuesday is playing here.

The show we’re seeing on Tuesday is playing here.

I think here might be a good time to explain about the traffic here… IT IS NUTS!  At some spots – both before and on our tour – we had to jaywalk, squeeze between cars, or do other insanely crazy things that go against all instincts for self-preservation.  Jenny was NOT comfortable with this, even at one point trying seriously hard to pull me down the street and over to the corner.

Even before the Broadway tour, our feet started to HURT!  We decided to be lazy, went back to our B&B, and ordered Chinese food while Jenny passed out on the floor… but the day wasn’t done!

I am either brave, foolish, or some combination thereof, but I purchased a ticket for Jazz at Kitano for the Friday night show.  Ben is not a jazz fan, so I decided to go alone.  I looked up the train route on the MTA web site, and hoped and prayed I wouldn’t get too lost walking from 42 St to Park Avenue… my friends have told me that I am brave, so I’ll go with brave… but I didn’t feel brave at all!

That walk started off badly.  Jenny seems to struggle finding the corner near our B&B, so I walked several blocks while listening (and doubting) my GPS tell me that I was on the wrong street, so we went back and had to find the corner, which we ultimately did.  The rest of the trip to the Subway went off without a hitch; Jenny even took me directly to a box where I could swipe my card, and we JUST made it on the train.

I started to get nervous once I got off the train at 42nd street, but Jenny got me to the steps.  We got a bit disoriented, but I heard someone use the door to get toward street-level, so I directed her that way.  We made it up to W 40 St entrance, and we were off and walking.  The crowds, even at 9:30 at night, were HUGE – partygoers, tourists, even young kids.  Jenny nearly effortlessly guided me through them, around them, beside them.  I kept on walking until I got to W 38 St, which is where I thought I needed to be… and we walked, and walked, and walked.  I started to get nervous when we passed where I thought we should be, because my GPS kept on telling me we were going to go to E 38 St… but I decided, trust the dog, trust the GPS, ASK PEOPLE!

I did end up making it without incident, and squeezed in to the show just before it started.  The staff at the Kitano was incredibly attentive without being invasive, asking how they could assist… it was a wonderful experience!

I ended up sitting with a friend of Scott albertson, leader of the band.  The club was VERY anti-talking during performance, so we chatted a bit between songs.  The jazz was blues-influenced, with old standards and new interpretations.  As a special guest, a young girl played the piano on one song, and the saxophonist came back from the first set to stick around and play with her on the second one – she is 12 years old and plays the piano wonderfully!  The whole show was a great experience, including birthdays and that Robbie Burns song that you sing every New Years Eve and can’t get out of your head.

Turned out that all the people sitting at the table beside me were either band members or friends and family related to them.  They heard my story about walking from Times Square, thought I was sooooooo brave, and said that Scott would give me a ride back to the hotel.  I SO accepted, and wound up riding back with half the band!  Jenny was a big hit at well, staying calmly (asleep?) during the whole performance, but she did say hi when we got to the hotel.

We all fell into bed, exhausted after a day that didn’t start out so great (I have a massive bump on my forehead to prove that), that ended up terrific.  And now… for tomorrow!

New York Vacation day 2: Subways, bus trips, and pennies

25 Thursday Dec 2014

Posted by blindbeader in New York vacation

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We got up early this morning and prepared to face the day, unpacked the rest of our things, drank Ben’s kick-you-in-the-teeth coffee, and had breakfast in the cafe at our B&B – I enjoyed the waffle-iron frittata, and Ben loved the French toast.  We could have spent hours talking to Kipp (our innkeeper), who has had many careers – actor, furniture maker, playhouse owner, and probably a zillion other things we haven’t gotten to yet.  I honestly think I could spend a month talking to him about life experiences, from Hurricane Sandy to building furniture to thoughts on pride of residence… oh, wait, we did that this morning!

 

We left Jenny in the room to rest and recover for an hour or so, so that we could locate the Subway stop(s) closest to our B&B.  We got our Metro cards, and decided to take a train ride just for fun.  We took the E train to Penn Station, and got off to see where Madison Square Gardens is, and fulfilled our desire for hot dogs from a street vendor.  I got a chili dog that leaked everywhere, no matter how straight I held it… thankfully we had a ton of napkins!  Then we picked up a couple things from a pharmacy, which is where we heard our funny quote of the day.  I keep forgetting that American money includes pennies, and I made a comment about that; the cashier was surprised that we didn’t have pennies.  Ben showed her a toonie and told her it was worth $2 in Canada.  Her response was priceless: “That’s $2? Here, that’s a souvenir!”

 

We made our way back to our B&B, called friends and families to wish them merry Christmas, rested a bit, and then Ben went out to take some pictures.

New World Train Centre skyline

New World Train Centre skyline

 

Greenwich Street facing south from Canal Street in black-and-white

Greenwich Street facing south from Canal Street in black-and-white

 

We have been looking forward to a holiday lights and movie sites bus tour since we first heard about it.  The normal meeting spot was closed today, but we met up with Max, our tour guide, across the street, after enjoying lamb gyros and pretzels from street vendors for dinner.

 

Cool globe at Columbus Circle

Cool globe at Columbus Circle

 

Poor Max has a hideous Christmas sweater!

Poor Max has a hideous Christmas sweater!

 

 

It was an interesting way to see the city, but unfortunately traffic in some areas was insane, Jenny decided the little tiny spaces on the bus floors were GREAT for scavenging (aided by a spilled bag of jellybeans), there were too crying babies on the bus, and Max (our tour guide) only have a finite number of movies and trivia questions to choose from to fill the time.  We ended up at Macy’s, where Ben took this great picture of the Empire State Building.

 

The Empire State Building in Christmas Colours

The Empire State Building in Christmas Colours

 

We caught the train from Penn Station, where thankfully Jenny had mostly gotten over her case of the munchies (thank goodness for the Halti!!!) and arrived back at our B&B, where we are planning tomorrow’s itinerary.  On the docket?  New York Water Taxi, The Intrepid, and the Inside Broadway Tour!  This will be our first time using our new York Passes, which (according to our calculations, will get us in to see a ton of attractions we are either too inexperienced or cheap to take advantage of without it 🙂

New York Vacation Day 1: Incidentals and travels

24 Wednesday Dec 2014

Posted by blindbeader in New York vacation

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Well, we arrived at our B&B about two hours ago, and are both absolutely exhausted!  Even on the best of days, air travel is exhausting for many people… we are both wiped, feel disgusting, and really just wanted the opportunity to sprawl as much as possible.

 

In preparation for this trip, we purchased MuttMuffs for Jenny, as the past couple of trips she has not been a great traveler.  We won a contest that provided us with two Roam Mobility Sim cards so that we can call and be reached while we are here, and we made sure we had talk, text and data plans at the ready so that we can keep in touch with friends and family.  And exchanging money? Yeeeeesh! I have never in my life had to fold money before; Canadian money includes Loonies ($1 coins) and toonies ($2 coins), and the new $5, $10, $20, $50 and $100 bills are made of a plastic-feeling material that includes braille symbols that can help someone who is visually impaired identify their money immediately (even our previous currency had these markings).  Here, the money is paper, with no markings, and the smell gives me a contact high (is it the ink?)  Thankfully, I have folded my bills into cool different shapes which thankfully were not held up at the airport…

 

I have mixed feelings about traveling in airports with my guide dog, but thankfully Jenny has matured sufficiently in the past six months, and handled security with the professionalism she possesses.  Our first flight, to Denver, was a bit of a gong show; we sat very close to the front of the plane, and Jenny was very very cold.  Even though I used her jacket as a blanket, it was still too cold, too confined or too loud for her on the plane, and she nearly vibrated the whole flight.

 

Once getting to Denver, we had a bit of a problem.  Jenny was giving me all the signals that she needed to go outside, but the animal relief area was both outside security and at the far end of another terminal, and we only had less than 1.5 hours to get to our next flight (cane users thankfully don’t ever have to deal with this…).  I tried to improvise a “pee-pad” in a bathroom, and she wouldn’t go… she turned around in circles and just sat down; I could see the wheels turning in her head, thinking “Well, this is a very very bad idea…”  This ultimately resulted in a dog that desperately had to relieve, no where to do it, and a hope and a prayer – or several – that the 3.5-hour flight ahead would be as uneventful at the end as it was at the beginning.

 

But I didn’t need to worry; the plane departed and landed on time… and without incident.  There were several extra seats, so we did a little bit of musical seats amongst our row, which enabled Jenny to have the space in front of two seats – mine and the one in the middle!  I know some people who wouldn’t accept this, but why cut off my nose to spite my face?  And anyone who is not sure their dog will benefit from MuttMuffs – they have earned their keep FOR SURE!  Jenny used to always sit up and squirm during takeoff and landing… today, NOTHING!

 

We landed at Newark, and Jenny was pulling SO hard on the harness – a typical “take me out now!” sign.  Thankfully, there was an exit door right by the baggage carousel where we found a great patch of grass for her to happily answer nature’s call.  As soon as that was done, she was a very very very calm dog, taking me back to my husband, who unfortunately ripped an unimportant zipper on our duffel bag when carrying it off the carousel.

 

Then… the organized chaos of the Passenger Pickup area of Newark Airport.  It was honestly crazy… there were attendants constantly yelling “If you’re not dropping off or picking up, get out of the way!” and I could tell that this had been said multiple times every day.  We chatted up one of the attendants, and he said that he uttered that phrase “all day, everyday.”  Our hired car picked us up and got us to our B&B, talking about driving in the city, his homeland (India), asking questions about Canada.  My favorite line – just based on his tone – was “I don’t like the south of India… it is WAY too hot! (emphatically) I am from the north! (quickly)”  I doubt I can adequately convey the humor of it, but it was just so priceless!  In the 30 minutes in his car, I heard more horn-honking than I do in a month back home.

 

Upon arrival at our B&B, we were met by the innkeepers, Kipp and Margo.  Once we got inside and started to settle, the first thing they asked was if they could say hi to Jenny.  Normally I wouldn’t, be OK with this, but Jenny had been in work mode for 12 hours straight, including air travel, so I took off her harness and let her go.  She ran up the stairs and played “Doggie for Mayor”, promptly endearing herself.

 

Since then, we’ve ordered and eaten New York-style pizza – unfortunately the delivery driver didn’t want to accept our groupon, but did in the end – watched cheesy game shows, and unpacked our suitcase.  Jenny is now fast asleep on her blanket on the floor beside my bed, and we will live to face our first full day in New York City!

Going on Holidays…

23 Tuesday Dec 2014

Posted by blindbeader in Uncategorized

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But you are coming with me!  For the past six months, my husband and I have planned, fretted, budgeted, dreamed, freaked out, planned, budgeted again, dreamed some more… you get the idea… tomorrow morning, we, along with Jenny, will take to the skies en route to New York City!

 

My plan is to chronicle my journey as a tourist – yes, a blind tourist, but a tourist – detailing all the sights (via sounds, tastes, smells and touch) of new York City… and some things are likely to surprise everyone… myself included!

 

So hang on to your hats, folks…

 

In the words of Frank Sinatra, start spreading the news…. we’re leaving, er…. tomorrow…?

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The perils of a Blind Bookworm – blind characters in Books

19 Friday Dec 2014

Posted by blindbeader in Uncategorized

≈ 7 Comments

One thing I say frequently – both in my life and on this blog – is the idea that blindness is viewed by the general public as simultaneously fascinating and repellant.  Nowhere is this more on display than in mass media – books and movies in particular.  Since my exposure to movies is limited by my own choice, I will simply address books in this blog.

 

BIOGRAPHIES

I love to read journeys of those who have in some way or another come to terms with their blindness – whether from birth, genetic disorder,or accident – and still embrace life by enjoying family, athletic pursuits, or careers.  I have mentioned a couple of them in previous posts, and have more on my to-read list.  The one complaint I have about many of these books – written particularly by those who lose or have lost their vision gradually – is the anger and denial process.  This might sound hypocritical, because we all have gone through it in some form or other, but I get so frustrated that the denial process includes all the thoughts of what blind people can and can’t do.  Of course, there are blind people that can feed into all manner of stereotypes, but as someone who breaks the mold for many of them, it does raise my hackles.  Who says losing your vision means you can’t get a job, marry, raise children, volunteer in the community?  Unfortunately, because of the early sheltering that can sometimes suffocate a blind person for years, these ideas are hidden not far below the surface when a member of the general public thinks about blindness.

 

LITERARY NOVELS

I have discovered several novels that have been published in the past couple of years that have either portrayed blindness realistically or otherwise.  I will not name them here, because this list will change and grow.  But what I do like about some of them is that they portray blind people with their own foibles – neither overly sheltered nor superhuman.  I read one novel recently where one main character just happened to be blind; if she hadn’t been, the novel would’ve had a couple of minor changes to some dialogue, but the plot would have been unchanged.  Another novel I read had a blind character whose blindness was integral to the story, but one plot line is being faced by blind people all over – the perception of their capability as a parent.

Conversely, I have read other novels with blind characters who either use their blindness as an excuse for being self-indulgent, arrogant, or reliant on other people.  One book I read had a blind character who was in such denial about his blindness that he used echolocation to navigate, without the aid of a cane or a guide dog, and apparently nobody else knew he was blind.  Another book involved the transition of a teenager into her family life after having been blinded in an accident; she relied heavily on others, and used her blindness as an excuse to take her pet dog to school with her even though he wasn’t trained as a guide dog.  Both ends of the spectrum outlined here can do immeasurable damage to the perceptions of the blind, leaving the impression that we are either more or less independent, socially adept, or opportunistic than we really are.

 

SCI-FI/FANTASY/ETC.

While this is generally not my reading choice, many of my friends – both blind and sighted – are interested in this genre, and have mentioned their impressions of blind characters in this medium.  “Daredevil” is probably the most famous character along this line, and most people don’t take his abilities seriously.  However, I have come across people who ask if I can perform feats like Daredevil; only in my dreams!

Others have pointed out books written in a style where you don’t expect the characters to be portrayed with realism.  I am not sure of my own opinions regarding this, because I prefer my characters to be real, whether they are sighted or blind; so I can’t offer an honest opinion not coloured by my perceptions of the genres.

 

TEMPORARY BLINDNESS

I have read several books where a blind character was either blinded for a short period of time, then regained their sight, or had suddenly gained sight after a life of blindness.  While it makes for great storytelling, it simplifies the rehabilitation of a newly blinded individual, which can bee intense, frustrating and demoralizing.  With sight restoration, I personally believe it perpetuates the idea that blind people need to be “fixed.”  While few of us are completely content with our blindness – it can be VERY inconvenient at times – most of us have grown to accept it as simply part of life.  But the idea that blindness needs to be fixed or cured can be emotionally damaging to those who have not reached that point, or even to those of us who are having a bad day and are simply tired of feeling so different.

 

So, what are some of your recommendations for book with excellent portrayals of blind characters?  What are some that set your teeth on edge because of their portrayal?  I am curious!

Getting Introspective: Life is fragile

12 Friday Dec 2014

Posted by blindbeader in blindness

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I don’t have any major words of wisdom today… in fact, this blog post will almost certainly be short, rambly, and aimless.  Emotionally, the past two weeks have been a complete roller-coaster, with peaks and valleys, sometimes one right after the other (the emotional free-fall is quite trippy).

I received a phone call from one of my closest friends last week… he’s like the big brother I never had.  Ask either of our respective families, and they will say something like, “She’s his sister” or “He’s her brother.”  We call each other “Sis” and “Bro”, and finish every conversation with a “Love ya, sis”/”love ya, bro”, and have done for over fifteen years.  In the 17 years we’ve known each other, I have seen him cry once… now twice.  His best guy friend died very suddenly, tragically, unexpectedly, last weekend, and the empty space left behind can never be filled completely by anyone else.  I knew this man – though admittedly not well – who died at the age of 44 – but I know several of his friends left behind.  As I type this, he is being memorialized and his life celebrated.  By nature of distance, I am unable to personally comfort those who are hurting, and be comforted by them in return.

Tragedies like this remind me of the complexity and the fragility of life.  No one knew last Friday that within 24 hours, many lives would change.  But change they have.  While family, friends, and loved ones are picking up the pieces and learning to live with a gaping hole in their lives, my hope is that they will live as their loved one did – fully, completely, embracing all that life has to offer.

Stay safe out there!

04 Thursday Dec 2014

Posted by blindbeader in Uncategorized

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If there’s one idea that I hear associated with blindness, and how blind people should live our lives, it’s “safe” or “careful.”  I’ve either seen or experienced first-hand the idea that I or someone I know are not supposed to do something – fry hamburger, cross a street, have a baby – because we cannot see and cannot possibly complete the task independently or safely.

What seems to be lost in the shuffle is that blind people are not the only ones who do normal things unsafely, or do unsafe things, period.  I’m married to a bus driver, and have myself heard scary stories about pedestrians and cyclists moving illegally in front of a bus or car.  They might get a honk from a horn for their suicide mission, but unless they are seriously hurt, they are not likely to have drivers or fellow pedestrians shadow them.  But because I am visually impaired, it seems that I – and others like me whose vision impairment is obvious – are open season for being followed, coddled, or otherwise told how to live by parents, relatives, and complete strangers.  Sighted children generally slowly gain more independence as they get older, but I have seen many blind children, teenagers, and young adults never learn to cook a meal, travel on public transportation, or gain marketable skills for the work force, which makes learning those skills later in life – if the individual chooses to do so – so much more difficult and  is a blow to the ego to boot.

Particularly in the past couple of years, I have begun to yo-yo back and forth on whether I appreciate being “safe”, if it means simply being comfortable and not taking reasonable risks.  But no matter how safe and risk-averse we are, humans are not wrapped in bubble wrap or cotton.  We will sometimes fall down stairs; we will make a terrible meal (I cannot for the life of me make grilled cheese – does that make me a bad blind person?); our hearts and souls will connect with someone – or several someones – and the relationships will strengthen us or break us wide open… and that is OK!

I have recently come to the decision that safety for its own sake is underrated – nothing ventured, nothing gained and all that – while recklessness is foolishness (texting while crossing a street? bad idea!).  We cannot be protected from everything – those I know who have been so are unable to cope with the challenges of life that inevitably arise – but we can stumble and fall and make mistakes and  laugh and cry with the fullness of life outside the theoretical bubble wrap which is supposed to protect us.

Oh, and those of you in “winter cities”… be careful on the ice!

Borrowed post: I Apologize For The “Inconvenience”

28 Friday Nov 2014

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Due to circumstances partially beyond my control – a visitor from out of town (planned), a freak winter blizzard (not planned) – a blog post of my own was not m ade today.  But my friend Meagan has, once again, hit the nail on the head.

 

I must preface this by saying that not everyone is like this, but even sometimes little things like heavy sighs or joking comments like “oh, sure” can make me read something into it that just isn’t there simply because the “inconvenience” factor has been so often thrown in my face.

 

But, for the most part, people are amazing… I remember this on a day that I am snug in my house, while my dog is curled up at my feet, and coffee is on and water is boiling for my friend’s tea.

 

I Apologize For The “Inconvenience”.

“Us” and “Them” – taken to extremes

20 Thursday Nov 2014

Posted by blindbeader in Uncategorized

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I don’t know what it is, but lately I have seen a great increase in the mentality of “us” v. “them” – whatever form that happens to take.  There have been articles printed separating nationality, race, religion, political affiliation (if any), sexual orientation, marital status, number of children (if any), and on and on the list goes.  While by birth, preference, or biology, I fall into any number of similar or opposing camps, I can decide how I choose to treat those who are different from myself, starting with the one group of people who are very much like me – those who are visually impaired.

This observation – by pure coincidence – comes on the leadup to National Bullying Awareness Week.  Perhaps also by coincidence, I have stumbled across articles that have detailed some of the double standards placed on those who have low vision by those who have none and vice versa. I must confess, however, that I am not immune to this “us” v. “them” mentality myself.

I have started reading biographies of people who are blind or have low vision, and I find myself frustrated by the perceptions of blindness that pervade many of these pages, particularly by those with low vision.  I laughed out loud at Ryan Knighton’s antics in “Cockeyed“, but was embarrassed on behalf of other blind people when he detailed the week from hell at blind summer camp.  I loved Nicole C. Kear’s “Now I See You“, but again was slightly dismayed by her journey of denial due to her own perceptions of what other blind people were like.  Am I uncomfortable because I see myself or people I know in these pages?  Or is it closer to home?  Some of these writers are people with whom I should find kindred spirits, and yet I find myself jealous because some can see better than I can while – admittedly with a sense of humour – are detailing some of the worst stereotypes about people who will in all likelihood come alongside them when that precious vision is gone.

All of this is not to mention comments that I have seen (and occasionally made) about how sighted people “just don’t get it!”  My friend Gregg has best described the dichotomy of building bridges and doing our best, but he is completely right; we will never 100% bridge those gaps.

Molly Burke is probably one of the most well-known Canadians who has been personally affected by bullying.  She could choose to be angry at sighted people in general – how dare they insult her, taunt her, ridicule her? – but has chosen to spend her teenage years and young adulthood to bringing awareness to the effects of bullying.  On the flip side, those who get past the novelty stage of our blindness or visual impairment should likewise be commended – not for their charity (“Good for you for befriending the blind girl!”), but for their simple willingness to see us as people.

Are we all just so afraid of our differences?  Do we wrap ourselves up in righteous piety because WE have it harder than THEM?  How arrogant can we be?  While acknowledging these differences is not a bad thing and part of what makes our society so fascinating, we can’t wrap ourselves up in our differences at the exclusion of our shared humanity.  If we avoid lingo that is designed to inflame and enrage (ableist, racist, etc.), the more likely we are to all understand each other just a little bit better.

Let there be light! (well, sort of)

13 Thursday Nov 2014

Posted by blindbeader in Uncategorized

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Many people assume that if you are blind and travel with a cane (or, in my case, an adorable guide dog), all you see is black.  This is actually not true, on many counts.  There are as many causes of visual impairment as there are blind or visually impaired people, and many have varying degrees of vision.

 

People I know who are totally blind often tell me that they see nothing – not black, just nothing.  Sure, technically, black is the absence of colour, but the truth is that black actually does have a form in the visual realm.

 

Personally, I have no vision in my left eye, but I don’t see black in it.  Since I have visual memory from higher vision as a child, I can tell you that, for the most part, I just see an absense of any colour – more of a bland gray, if you actually have to put a colour to it.  Also, I see a little light in the far left corner of that eye, not unlike a candle flame.  This is nearly constant, whether my eye is open or closed; thankfully it doesn’t affect my sleep!

 

My right eye is much more complex, because I had so many operations as a child.  I have enough vision to see light and dark, some sharply contrasting colours, etc., but everything I see is two-dimmensional.  I walk into a room and everything I see – people, furniture, my hands – look like flat pancakes.  So I could never confidently walk into a crowded hockey arena sans cane or guide dog and hope to safely find a seat without crawling over people simply because my visual perception is so skewed.

 

So why should you care?  Maybe you won’t, and that’s OK.  But I had a ten-second conversation with my boss this week that dumped my perception of myself and my eyeballs on its head: I am guilty of the very thing that I accuse others of doing, assuming that because my vision isn’t perfect, that it doesn’t exist.

 

I stepped into my boss’ office to follow up on an email I had written suggesting changes in spelling and grammar for a Word document he had sent me.  He thanked me, and said “That’s why I sent it to you; get another set of eyes on it.”  Without missing a beat, I replied, “Well, ears; my eyes don’t work!”  He paused for just a split second and said, “Yes, they do!”

 

I was so surprised I nearly dropped my coffee.  “What do you mean, my eyes work?  You know that I use JAWS to use a computer…”

 

He calmly told me, “Yeah, but you can walk into my office and know if it’s sunny when you look out the window; you get a bit blue if you don’t get outside during the daylight hours; you sometimes turn on lights if it’s dark and you’re the first person here.  So sure, your eyes don’t work perfectly, but they do ‘work.'”

 

What this perspective means for my life and my outlook, I just don’t know.  But I think, for the first time, I need to start looking at some of the double standards that I – and by extension others like me – have unknowingly put on myself.

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