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Author Archives: blindbeader

All the Things they NEVER taught you at Guide Dog School

31 Friday Jul 2015

Posted by blindbeader in blindness

≈ 3 Comments

I talk a lot about my guide dog on this blog – some might say too much.  But the past week has clearly shown me that no matter how comprehensive a guide dog school’s training is, there are certain things that you just don’t know you need to know… until you need to know them.

1) There will occasionally be times and places you don’t take your dog. On those occasions, it is not appropriate to tell your companions to find the crosswalk, or wait on the bus bench while you pick up your backpack.  Instead, bite your tongue and laugh uproariously at these faux pas, because God knows they’re laughing at you.  I actually found myself doing this when a bus pulled in to a stop, and the instant the doors opened, I just opened my mouth and said “Wait…” and my friend laughed so hard he nearly cried.

2) When you pick up that cane on said rare occasions, it is completely normal to hit posts and benches and garbage cans with it; that’s what it’s for.  But no one prepares you for the head trip that can ensue at moments like these because, oh yeah, you’re dog’s not being naughty; HE’S NOT THERE!

3) How to keep a dog calm after an injury.  On Monday night, Jenny got her tail slammed in a screen door.  Without getting into blood and gore, it wasn’t pretty.  Simply grabbing stuff and acting was an incredibly useful skill… which did ultimately require veterinary intervention…

4) Finding ways to distract your dog when re-bandaging wounds yourself is necessary.  My dog gets stupid with treats, so when it came time to re-bandage her tail, for some reason, a discourse about current immigration practices was all she needed to calmly stand there and let me wrap her tail.  This process took three minutes; previously, just getting the first layer on took 10 unsuccessful minutes of having her lay on the floor…

5) Discerning the difference between vomit and chewed-up “ground candy”.  While I have never experienced this first-hand, when I asked about things they never learned in guide dog school, my friends Lisa and Deanna had a lovely enlightening discussion about randomly discovering doggie throw-up instead of the item they thought they were taking away from their dog’s inappropriate chewing.

6) How to use a “cone of shame”.  I have not yet mastered this skill, but I will… when Jenny’s bandage  is removed and she wants to lick at her tail… Conversely, how to just stand there and laugh as your dog barks maniacally at the vet tech holding the disassembled cone of shame…

7) How to just stop second-guessing and follow your dog.  This has steered me wrong, but it does steer me right if my dog desperately has to use the facilities and can’t find any other way of “telling” me (short of doing her business on a public sidewalk).

8) How to simply enjoy the ride of the good, the bad, and the ugly. For a type A personality like mine, this was tough, but I had a great trainer and terrific follow-up support, and wonderful friends who DO remind me that my guide dog is a dog, and not a perfect, ugly-looking little automaton.

Guide dog school training is definitely comprehensive; they teach the skills to bond with your particular dog, and do prepare you for eventualities, such as distractions, traffic checks, and crazy weather.  But no matter what the training, much of what is learned is learned in the trenches… and that’s OK.  Simply having a sense of humour and acting on instinct when necessary will get any guide dog team further in a pinch than one traveler with a cane (which, by the way, is a completely 100% valid mode of travel).  I do prefer my dog… though, largely because I look much less stupid giving commands to said cane when I break it out and use it…

If you Want it Done Right, you Do It Yourself… or Ask Someone Else to…

25 Saturday Jul 2015

Posted by blindbeader in blindness

≈ 6 Comments

Tags

blindness, communication, friendship, independence, relationships, requesting assistance

Last week I posted on my facebook status a question about which blog topics friends, family and readers wish me to cover. One topic brought up a HUGE level of discussion from blind and sighted friends alike:
When is it appropriate for a sighted person to say no to a request from a blind family member or friend? When is saying no selfish? When should the blind relative/friend take responsibility for themselves and be as independent as possible?

I took to Twitter and asked the question, and the level of responses was astounding. Ultimately, the answers went something like this (and I am inclined to agree):
1) A blind person should do whatever they can to be independent, but (just like sighted people) may find certain skills hard or challenging. Ultimately, making a concerted effort without resounding success is one thing; not even bothering to try in the first place is another.
2) A sighted relative/friend is within their rights to say no to requests if the requests are too frequent, unreasonable, or for a task that the blind person is clearly able to do for him/herself.
3) It IS selfish to say no if the task cannot reasonably be completed by the blind person. For example, if a blind person tries to get a restaurant’s menu online before going out for dinner and finds it inaccessible (embedded picture menus are very common), leaving them twisting in the wind and asking an overworked waiter to read them the menu while you’re sitting right there is unreasonable.

That having been said, it all depends on the friendship or family dynamic. Many sighted people are too quick to step in and do for us what they THINK we cannot do for ourselves; others have super-independent blind friends or relatives who insist on doing everything even if it’s not expected, reasonable, or even requested. My relationship with my friends and family has generally clear boundaries, not because of my blindness or their vision, but because all relationships are give and take and (I hope) communicative. For example: I fold laundry in my house (whenever I get to it); Ben folds the socks. Ben HATES folding clothes, and I don’t mind putting my mad organizational skills to work figuring out how to squeeze that last T-shirt into the dresser drawer. It takes me FOREVER to fold socks, and even then I can’t be sure they match; what takes me an hour with mixed results takes Ben five minutes. We’ve found it a generally fair tradeoff. When it comes to restaurants, if I can’t get the menu online ahead of time, any sighted companion who is dining with me will read me the headings (soups, sandwiches, pastas, wraps) so I can get an overview of the menu without having the whole thing read to me when all I want is pizza.

At the end of the day, it’s up to me, and others, as blind people to do whatever we can reasonably do for ourselves, and politely advocate when things are unnecessarily being done for us; it’s up to friends or relatives to tell us when our requests for assistance are unreasonable (too frequent, cutting in to personal time, without reciprocity). For every person and relationship, the specifics will be different (I love that my husband can cook, but I do some mean cooking myself; others might find cooking scary, challenging, or incomprehensible, and that’s OK). At the end of the day, communication on both sides of the blind/sighted continuum will make boundaries and expectations perfectly clear. So to my blind readers: do what you can, make an effort, ask for help when needed, but be generous with your thanks and mindful of time commitments. To my sighted readers, love us enough to tell us when we ARE being unreasonably “needy”, ask us what you can assist with or if our struggling with a task is necessary so that we can improve it. To everyone, sighted and blind, be quick to listen and slow to speak harshly, and keep an open mind.

My best friends are Human… Seriously!

18 Saturday Jul 2015

Posted by blindbeader in blindness

≈ 3 Comments

I take the bus to and from work every day, and have done for the majority of my working life.  Even when I wasn’t working, the bus has always been my primary means of transportation to job interviews, to get books at the library, to meet friends for coffee, to go shopping, you get the idea.  For the most part, I’ve had good experiences on the bus, but sometimes… not so much.  The bus is full of interesting people – both fascinating and otherwise – and I get many reactions from many different people.  I’ve been told in a sickly sweet yet loud voice how sorry someone is because I can’t see, apologies from someone stepping on my guide dog’s paws because she likes to stick them out in the aisle, and the evver-present questions about how I live my life and could possibly be happy as someone who can’t see.

One comment I got yesterday really got my hackles up.  Perhaps because it was just an exhausting day, but I got pretty prickly when a man got on the bus, he saw my guide dog, and said something to the effect of, “Such a cute dog; he’s your best friend!”  Someone might say that, well, a dog IS a man’s best friend, but it wasn’t said like that; it was said like my dog is MY best friend.  I tried to correct him by saying something like “Well, she is a wonderful dog, but my best friends are people,” and he came back with “no, no, no, she is your best friend because she is your eyes!”

At that point, I gave up.  There’s no point in trying to change someone’s perception of what my life is like, or what my dog does for me.  Sure, Jenny is a super-smart dog (as evidenced today by her super awesome problem-solving skills contrasted with a HUGE sniffing/distracted tendency), who gives the best snuggles a girl could ask for; she’s kept me safe from oncoming cars, kept me going in a straight line or angled me to a corner when I thought I knew better, guided me through the crazy streets and sidewalks of New York City alone and with my husband, and taught me more than I ever wanted to know about my own perceptions as a blind traveler.  I owe her a tremendous debt, but she is a dog, not a person, and my best friends are people.  Wonderful, whitty, sarcastic, moody, flawed people.  Jenny cannot drink a cup of coffee with me at 4:00 AM when I’ve had a bad day and can’t sleep.  She can’t wax eloquent on the economy, literature, politics, religion or technology when I feel like having a profound conversation.  She can’t call or text me and allow me to serve her when she’s struggling due to some severe medical concerns.  She can’t verbally smack me upside the head when I do or say something totally outlandish (that’s when running me in to poles comes in to play).

I love my dog – I truly do – but when it comes right down to it, we are different species.  We rely on each other in many ways more special than I can say.  But when it comes right down to it, she does have her limitations.  She will never be a human being, and those flawed beautiful creatures are my best friends.

Beauty is NOT just in the eye of the Beholder

10 Friday Jul 2015

Posted by blindbeader in blindness

≈ 5 Comments

Tags

beauty, discovery, perception, Senses

Sometimes people treat blindness like it’s this endless world of darkness.  Of course, in a sense of visual acuity, this might be the case for some, but certainly not all of us who live with vision impairment.  And in the figurative sense, nothing could be further from the truth.  When someone makes such comments about how drab and boring my life is, the conversation goes something like this.

Random person (RP): “Oh, I’m so sorry you can’t see.”

Me: “It’s not so bad.”

RP: “But you can’t see sunsets or pictures or…”

Me: “True, but I–”

RP: “That must be so tragic.”

And it continues in this vain.  Vision is so integral to sighted life – and, as my friend Leona so eloquently put it, such a greedy sense – that the idea of living without it is viewed as more terrifying than premature death.  I would even go so far as to state that we who live without seeing such beautiful things as sunsets, loved ones, photographs and mountaintops – or seeing them imperfectly – are thought of as “broken” people.

 

But just because I can’t see much at all – or others I’ve met in person or through social media can’t see things clearly – doesn’t mean that beautiful things can’t be appreciated visually.  Last week, I found this gorgeous article by Nicole C. Kear, author of the terrific memoir “Now I see You.”  In the article, she briefly describes what it was like to discover there would be a point at which she wouldn’t be able to see anymore, and a recent experience where she accidentally left her Iphone at home and realized she could still visually catch beautiful things around her.  I found it poignant and moving, and have enjoyed seeing her journey of losing her sight – from “carpe diem” to acceptance, sometimes one in spite of the other.  The world can also be captured through photography, and one doesn’t necessarily need great vision to create works of photographic art.  Not long ago, Dudley Hanks was interviewed about his work as a freelance photographer; in another interview, he showed how technology aids him in capturing, touching up, and developing his photos.

 

But what about those of us who’ve never had vision to begin with and have no memory or reference to colour?  Or those who simply don’t process the world visually?  We are by no means left out when it comes to enjoying the beautiful things of life.  Some have a terrific ear for music, others can identify the call of many birds around the world, still others are fantastic chefs and can find the perfect herb or spice to enhance a dish’s flavour or aroma.  I enjoy working with my hands, particularly with beads; the contrast of size and shape (and, yes, colour) is breathtaking to me.  If you’ve never gone into a bead shop, closed your eyes, and just let your fingers run through the hung strands of beads, take the opportunity and enjoy one of life’s simple pleasures.  Do as I did last weekend and take a step outside on a warm summer night (provided it’s safe to do so), close your eyes and enjoy the quiet of an evening (or the sounds of children laughing), the smell of neighborhood barbecues and backyard fire pits, and the feel of the grass between your toes  without all that greedy vision to distract you.

 

Are there times I wish I could fully see my loved ones’ faces, photographs, and nature, or get in my car and just take a scenic drive through the mountains just because it’s my heart’s desire?  Sure, of course there are.  But I think in some ways my lack of vision has allowed me to appreciate some of those little things that I can smell and touch and hear without the greediest of the five senses hijacking my enjoyment.  And just because someone’s vision isn’t perfect, it doesn’t mean it can’t be used to capture some truly beautiful things visually.  The world can be a wonderful place, filled with sights, sounds, smells, textures and flavours; treating sight like it’s the only way to appreciate beauty is itself a way of denying oneself an enhanced appreciation of beautiful things themselves.

Nine days

27 Saturday Jun 2015

Posted by blindbeader in Uncategorized

≈ 4 Comments

On Monday, June 15, I received my layoff notice, and my life nearly flipped upside down.  Nine days later, on June 24, I received a job offer from my second interview.  No one is more surprised than me!  My first day was today, and I am still coming down from the emotional and mental overload that arriving at a new workplace always brings.  Even something as basic as setting up my desk the way I want it seems like this impossible task when coupled with figuring out who’s in which office, updating my screen reader so that it can be used on their system, and dealing with the sheer amount of information that looks so effortless when it’s being processed by someone else.  That having been said, I am thrilled to be employed again, so quickly, and based on my own description of my capabilities.  They’ve welcomed Jenny and I with open arms, given me a great space to work in, and put an air purifier at my desk because another coworker has allergies to dogs.  I feel like I can use my own experience in both administrative work and customer service and improve on skills that have gone by the wayside (writing by hand, for example).  Words cannot express my joy at the way my life has turned around so quickly.

And yet…

Alongside that joy and relief and complex sense of nervousness comes a strange feeling of guilt.  Guilt because I have succeeded while many I know are still struggling.  Some I know and love have struggled for months to find consistent work, some forced to do day jobs to help make ends meet; others (primarily visually impaired friends( have struggled and fought for years for an opportunity like mine.  There are even those who have been turned down for job after job after job, been turned down so many times that they have given up.  I have no idea what to do with this feeling, beyond being the best hardest worker I can be at whatever I do.  People talk, and while I know I am not the only topic of conversation at the office, the fact is that I DO represent blind people to those who work with me.  I will never be perfect, after all (like Meagan so eloquently put it, it’s a human thing), but it is a very small professional world out there; every job I have ever had almost creepily – if peripherally – included someone who had a connection to a job I had before.  My previous employer went to university with someone who was also visually impaired, and I firmly believed that experience enabled him to advocate on my behalf.  So without putting too much pressure on myself, I hope my own experience, work ethic, and willingness to make things work will enable me to push back and advocate by proxy for you, whoever and wherever you are.

Pounding the Pavement: Receiving a Pink Slip

20 Saturday Jun 2015

Posted by blindbeader in Uncategorized

≈ 5 Comments

On Monday, I was escorted into the board room of my place of employment and handed a half a dozen sheets of paper, effectively saying that my services are no longer needed.   It was quick, brutal, yet oddly compassionate in a way; I somewhat expected it at some point, but not on Monday, and certainly not in the way it was done.

From noon on Monday, I’ve joined the ranks of the unemployed here in Alberta, a province (like my previous employer) heavily reliant on oil.  Oil prices have declined sharply over the past six months, and I am by no means the only Albertan in this position.  That doesn’t make it any easier to handle.  For two or three days, I was an emotional wreck, crying at everything, not really allowing myself to grieve the loss of my job.  Poor Jenny picked up on my through-the-roof stress levels, and it was pretty ugly.  It was like a pop bottle effect – you are stressed, dog picks up on it, misbehaves, you get more stressed, dog misbehaves more, and around and around we go.

I hate job hunting.  I hate it with a passion rivaled by few other activities.  I hate looking through job ads for jobs that don’t require a driver’s license or who aren’t way out in the boonies with unreliable transportation.  I hate feeling qualified for a job just to be told at an interview that an employer thinks I can’t type 80 words per minute, talk to people nicely, or keep papers or electronic files organized because I can’t see.  I hate being over-qualified for some jobs and under-qualified for others.  But persevere I must, because my own dignity is on the line; without working, I feel incredibly inadequate as a person… there, I’ve said it!

Thankfully, there are some very serious positives to this whole situation.  I did not leave on bad terms, nor was I let go for incompetence; through no fault of my own, I am without work.  I can choose to take this opportunity to make jewelry (thanks for the encouragement, guys!), take supplementary training courses to make myself more employable, and the job market is good enough that I can get my foot in the door for plenty of interviews.  Ben recently got hired to work up north, so I will take this time to spend with him when he IS home, and with friends when he’s gone.  I told one of my former coworkers yesterday when I picked up my things that one day, I will think this is the best thing that’s ever happened to me.  But I am not quite there yet, and for now, that’s OK.  The fact that I can say this at all is all I need to know that I will come out the other side stronger and wiser for this experience.

For those – especially those who are blind or visually impaired – who are job hunting, keep going.  Send out that resume.  If you don’t have experience, take the opportunity to get some training if you can.  If you get figuratively kicked in the teeth during an interview because of perceptions of your skills and abilities, push back and make them account for their perceptions.  Above all, pick yourself up and don’t give up!  This has served me well before, and it will serve me well again.  I will be brave and strong and informed, and fight another day.

“But I know I saw you…”

12 Friday Jun 2015

Posted by blindbeader in Uncategorized

≈ 1 Comment

Very few people, when you get right down to it, like being mistaken for someone else.  Sure, if the comparison is favorable, it might stroke the ego, but at the end of the day it can be a little disconcerting.  I can’t imagine the complicated feelings faced by identical twins or siblings with a strong resemblance, since I am neither.  But I am blind, and as such, I – and those like me – seem to be interchangeable, even though some of us look nothing alike.

I have been in stores, malls, or on the bus, and had people come up to me asking when I got my “new” dog (apparently my “old” dog last week was a Golden Retriever), or when I dyed my hair darker (never), or how they swore I took the #52 bus last Tuesday (which goes to a part of the city I’ve never been to).  My friend Meagan, who I reference here often, used to get asked where her “sister” was, or people would just assume she was me and I was her (apparently we do resemble each other somewhat).  Most of the time I just shrug it off, but it seems I am not alone in being confused for someone else.

Brandon told me about traveling to another city and frequently being called by the name of someone who lived there.  Allison describes being called the name of every other local blind woman she knows.  Kelly used to sing at church with another blind woman; they look nothing alike, but the pastor always called them by the wrong name.  Michelle has a guide dog the same colour as someone else in her city, so sighted people constantly either get them confused or ask if they know each other; but the blind community in the same city can tell them apart just by voice.  Steve thinks this “mistaken identity” happens with every blind person who’s ever taken a taxi, though chose not to provide personal anecdotes.

So, why does this happen?  Perhaps because we are a very very small percentage of the population, or generally highly visible.  Perhaps it’s because some of us have similar mannerisms, use a cane or guide dog, or have nifty cell phones that talk to us.  Either way, it is by turns amusing and annoying, especially with how often it happens.

But what if you, like me, have a lookalike?  For years I have heard the “I saw you there!” and put it down to the inevitable, common comparisons outlined above.  But it wasn’t until about a year ago that I thought it might be true.  A bus driver I know reasonably well told me the story.  At that point, I had ridden his bus once or twice a week for several months, and we would have conversations on the road, so he recognized me on sight.  One day, he saw me at the University campus with my guide dog.  He took a detour out of his way, called my name, I turned around… and it wasn’t me!  He told me about this a couple of days later, and how embarrassed he was by the whole incident.  So anyone who knows someone who had this happen to them in Edmonton, you have my sympathies!  And by the way, it’d be neat to meet you, because I’m sure you’ve got stories about where people tell you you’ve been.  Who knows… it might have just been me!

She talks to me… REALLY!

06 Saturday Jun 2015

Posted by blindbeader in Uncategorized

≈ 2 Comments

Tags

bonding, communication, guide dogs

About ten years ago, I remember being really REALLY mad about something.  After that length of time, I honestly can’t remember what I was so angry about, but I do distinctly remember Annie running away and hiding in her “secret place” for several hours.  Annie – the cat who spent weeks following me around the apartment, who yowled every time I left her alone, who was so terrified I would never ever come back – picked that moment to tuck herself away in a never-to-be-found hiding place.  I had been angry before, and over the years I would be angry again, but Annie never again shied away from it.

 

Science has not been able to draw a definite conclusion about whether animals sense human emotions in and of themselves or react to our facial expressions, body chemistry, or other indicators that give them clues into our moods, fears, or medical status.  But from what I have observed – both from my pet cats and my service dog Jenny – there is some inexplicable way I communicate with them, and they with me.  For the sake of clarity – and because I’ve been asked more about Jenny’s role in this – \\\\\\\\\\\\\\\\\\I will address a guide dog’s intuitiveness in the next few paragraphs.

 

Jenny LOVES babies.  They are her downfall.  We get on a bus and there’s a stroller on board, she HAS to calmly, sweetly, take me to the baby carriage and show me the baby.  Normally, when she is excited about something, she goes insane, wagging her tail, maybe pulling, maybe whining, but with babies she is calm and collected.  I’ve had people who are terrified of dogs thank me for having such a calm dog around their baby.  This calmness was further exhibited last weekend when we visited with two other couples, one of whom brought their toddler daughter.  Jenny was game to play with her, and the cutest half hour of doggie-baby playtime ensued.  I don’t know why she is this way with babies and small children – perhaps she is trying to tell me something? – but even if she is excited when she notices them, when they are near her, she has this zen calm that defies explanation.

 

I am by no means the only guide dog handler who has experienced inexplicable calm from her guide.  Jackie told me of an instance where she had major surgery, and was away from her guide dog (matched for only five months) for several days.  She was very concerned her guide would jump on her or be otherwise too rambunctious for her that could complicate the healing process by breaking her stitches.  When Jackie got home from the hospital, instead of the welcoming committee, Tulip ran toward her, stopped and sat, and waited for Jackie to call her forward.  During the course of Jackie’s recovery, Tulip gradually became more playful, but Jackie thinks that Tulip just knew that she wasn’t in a position to jump and run and play.

 

I don’t have anything nearly so dramatic with Jenny, but there are many ways in which Jenny communicates with me, especially when we’re working.  Sure, there are the obvious things (how she moves in the harness, I verbally praise or correct her), but it’s so much more than that.  It’s like having a dance partner who intuits the next six steps before you have time to get your shoes on.  When we have bad weather, or I am sick, it’s like Jenny knows that I need her to be extra focused.  We once had a whole bunch of freezing rain in the afternoon, and my walk from work to the bus stop took half an hour (normally five minutes) because the sidewalks were veritable ice rinks; Jenny worried about me the first three times I fell, then took an initiative, dragged me across the street to a safer sidewalk.  I had to get us back on our original path, but I loved her initiative, no matter her motivation.

 

But it’s so much more than that.  Even when she is out of harness, we are always communicating, whether it’s a scratch behind the ears, her resting on my feet, or the incredibly hilarious “mrrrrrrrrrrph” sounds Jenny makes when she is bored out of her mind and wants the whole world to know it.

 

But recently, a troubling trend began to manifest itself in Jenny – she began to bark in harness.  This has occasionally happened before, but in the beginning of March it began happening more frequently, nearly daily.  I knew we were in big trouble one day when I was at work, and Jenny and I were walking toward the back door to go outside.  Jenny turned around and let out a low bark at the two people who were behind us walking to the same back door.  After that, I called BC Guide Dogs, not even being sure what I should worry about.  The prevailing theory was that she was suspicious of people, but that didn’t sound quite right to me, and I couldn’t quite figure out why.  I was advised to make a “barking” log, marking down where we were, when it happened, what was going on, etc.  Within 48 hours, I had part of my answer: anything she barked at was on her left, and Jenny started frantically scratching and pawing at her face.  Her vet diagnosed her with seasonal allergies, and with a combination of allergy medication, personal observation, and Rescue Remedy, we’ve been able to almost eliminate the problem.  On the occasions these days (much more rare) when she does bark on approach, it’s to someone she knows on a day where her ears are sore (I can now tell based on how she holds them) and she wants to tell THEM that she’s hurt.  The irony of all this is that if my own ears weren’t so sore on those days, I doubt I would’ve made the connections I have.  I wish she’d picked another way to show me all this – you know, something less dramatic and startling – but I am glad she tells me these things.

 

As I write this, I wonder if the mystical connection between me and Jenny – or any animal and its “person” – is far less mysterious than I have made it out to be.  But whether it’s magic, observation, or pure dumb luck, I wouldn’t have it any other way.

I expected Perfection…

30 Saturday May 2015

Posted by blindbeader in blindness

≈ 6 Comments

Tags

Assistance Dog Blog Carnival, guide dogs, hoping, learning lessins, regret, struggling

Nearly two years ago, my guide dog Jenny was introduced to me by a BC and Alberta Guide Dogs trainer.  I should have had a clue that she might be a character when the first thing she did when entering my home was to eat the cat puke we failed to notice under the coffee table.  After four weeks of training, by turns exciting and frustrating, we were ready to take on the big bad world as a guide dog team.

 

But something happened along the way.  Maybe it’s me, a bit of a perfectionist by nature, but almost immediately after the trainer left, my wonderful quirky dog turned into a little hellion!  The first three months in particular, I expected Jenny to consistently act the way she had in training.  At a particularly low point, three months post-training, we had a LOT of changes at home, at work, and with schedules.  I am almost ashamed to say that neither Jenny nor I handled it well, resulting in a particularly problematic goalball tournament in Oregon.  I was SO close to sending her back; she was pulling, running me into people, scavenging, not listening… it was AWFUL!  What made things SO much worse was that almost all my friends had seasoned guide dogs, and I was told by many of them that their dog never got dog-distracted, scavengy, stressed, making big mistakes like these.  I outlined a bit about the turning point during that weekend in Oregon on a guest post on my friend Meagan’s blog; I still have a long way to go, but it helped to know that while the behaviors weren’t OK, they weren’t that unusual.

 

It was almost instantaneous!  Right after that conversation, I stopped fighting Jenny.  I stopped thinking emotionally about her behavior and started thinking logically.  That particular low point, my husband and I were both under immense stress; we had water leaking into our house, dehumidifiers running 24/7 with a white noise that could’ve been used as a torture technique, I had changed both my place of employment and my working ours… no wonder Jenny was on edge!  Once I “got it” and stopped trying to fight her in harness, we stopped having so many problems.  Sure, we had bad days and still will, but once I stopped trying to be Alpha, she stopped acting like a dog so much, and started acting like a guide dog.

 

But I never seem to learn.  Even now, I come home and give my husband a “report” on our day.  Sure, we’ve had awesome days and days that go down the toilet, but almost all days lay somewhere in between.  I distinctly remember a terrific guiding day Jenny had about six months ago.  I had to go to a sporting goods store in a mall we seldom frequent to pick up something, and Jenny and I had only been there once before.  Jenny flawlessly guided me to the store, and when I found out we were on the wrong floor, she guided me to the far side of the store to the escalator we needed.  It was a glorious thing!  She did terrific guide work the rest of the night… but when we got out of the building to go catch a bus, she had what I like to call “30 seconds of STUPID!”  For those thirty seconds, her nose was going double-time, looking for food, interesting people, and smelling the “pee-mail” at the base of the light post; but when we got to the corner, the figurative light bulb flashed above her head, and she sat at the curb and guided perfectly for the rest of the night.  I can laugh about it now, but at the time, I remember thinking “What goes through your head, silly dog?”  In our early days, I would bring up the thirty seconds of stupid, then the awesome guide work, but I realize that’s all backwards.  Even people can have great days, then in a moment of frustration let out something careless or hurtful.  What makes me think my dog and I are any different?

 

I can choose to regret those early power-struggle days, and in some ways I do.  But I learned so much from making those mistakes that I don’t know I can call it regret.  perhaps I can call it an education: it’s only as good as what you do moving forward, building on those lessons learned and learning new ones along the way.

Can I just drink my Coffee? – on Education and Ambassadorship

22 Friday May 2015

Posted by blindbeader in blindness

≈ 5 Comments

Tags

ambassadorship, blindness, perception

Over the years I have heard now and again that I need to be the best blind person I can be, if for no other reason than I may be the first (if not only) blind person your average Joe or Jane might encounter.  Some might say that it is my job to educate others about blindness, humanity, and living life by answering questions or providing demonstrations of my skills or assistive technology on the fly, no matter what kind of day I’ve had or what my plans are.  While I do agree that politeness and courtesy go a long way, I personally think I should have the right to enjoy a cup of coffee without being approached and asked a thousand questions about how blind people cope with life, for two very important reasons:

1) I am NOT all blind people. My marital status, education, employment, life circumstances, hopes, dreams, and fears are entirely my own. Just because I have an overwhelming fear of ladders doesn’t mean the next blind chick shares that fear; just because my blind friend that I am hoping to meet for coffee attends university doesn’t mean that further schooling is my goal.

2) You wouldn’t routinely approach an able-bodied stranger at a Tim Hortons and start asking questions, would you?  If so, then we’ll talk…

 

Last year, I contributed to my friend Meagan’s blog post on this very topic, waxing partially eloquent about how that ambassadorship role is just too unrealistic and heavy.  Expecting me to be an ambassador for the blind is like expecting one woman to represent them all, or one police officer, doctor, or parent.  We all know where that gets us: nowhere!

 

Sure, I’ve asked REALLY stupid questions of friends who use wheelchairs, are deaf, or live with chronic debilitating medical conditions.  These are people I have met either online or in person, and we’ve struck up a conversation, generally about normal everyday things (politics, sports, work), and not random strangers who cross my path.  I DO find the random approaches at bus stops or in coffee shops quite disconcerting, because it seems that all person X is interested in is the fact that my eyes don’t work.  After whatever conversation we have, right or wrong, that person will take away what blind people are “really” like.

 

Perhaps the perception of me as a blind woman being an ambassador comes because I, with my cute black lab guide dog, am much more visible than a woman of similar age fitting my general physical discription.  A “normal” Millennial having a rough day in a shopping mall doesn’t generally get six offers of assistance in as many paces, but I do, simply because the perception is that because I am blind, I require assistance.  I can politely decline said offers of assistance and still be viewed as stubborn and ungrateful; I can be forceful about declining such offers and still be considered stubborn and ungrateful; or I can accept the assistance (whether I need it or not) and feed into a perception that blind people are helpless and always need sighted help.  What is the common denominator? Someone else’s perception.  People will view me however they choose to.  No matter what I do, someone somewhere will form an opinion of me, right or wrong.  A comparable sighted millennial will be perceived by the public for having tangled messy hair or ill-fitting jeans, but no one bats an eye at those perceptions either.  Why should we as blind people be immune from perception? It’s just human nature; we aren’t so special to avoid it. All I can do is live my life the best way I know how, accept or decline a myriad of offers of assistance as needed and smile and nod about people who only view me as non-working eyeballs with a cute dog.

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