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Monthly Archives: August 2017

Book Review: No barriers

31 Thursday Aug 2017

Posted by blindbeader in Book reviews, Nonfiction

≈ 2 Comments

Tags

adventure, blindness, growing, learning lessons, mountains

Several months ago I reviewed Erik Weihenmayer’s first book, “Touch the Top of the World.” When I learned his second book (and continuation of his autobiography), “No Barriers“, was coming out earlier this year, I snapped it up quickly, and read it just as fast.

No Barriers: A Blind Man’s Journey to Kayak the Grand Canyon
By: Erik Weihenmayer

Erik Weihenmayer is the first and only blind person to summit Mount Everest, the highest point on Earth. Descending carefully, he and his team picked their way across deep crevasses and through the deadly Khumbu Icefall; when the mountain was finally behind him, Erik knew he was going to live. His expedition leader slapped him on the back and said something that would affect the course of Erik’s life: “Don’t make Everest the greatest thing you ever do.”
No Barriers is Erik’s response to that challenge. It is the moving story of his journey since descending Mount Everest – from leading expeditions around the world with blind Tibetan teenagers to helping injured soldiers climb their way home from war, from adopting a son from Nepal to facing the most terrifying reach of his life: to solo kayak the thunderous whitewater of the Grand Canyon.
Along the course of Erik’s journey, he meets other trailblazers – adventurers, scientists, artists, and activists – who, despite trauma, hardship, and loss, have broken through barriers of their own. These pioneers show Erik surprising ways forward that surpass logic and defy traditional thinking.
Like the rapids of the Grand Canyon, created by inexorable forces far beneath the surface, No Barriers is a dive into the heart and mind at the core of the turbulent human experience. It is an exploration of the light that burns in all of us, the obstacles that threaten to extinguish that light, and the treacherous ascent toward growth and rebirth.

Continuing the Journey, with New Friends along the Trail

This book re-introduces us to key people in Erik’s life – his father, his siblings, his wife and daughter. We get to know and see some of their dynamics play out, discover their demons some kept at bay (and later taking over), grow and change with everyone. One thing that the author has done well – in both books – is balance interpersonal dynamics without verging far into sappy emotional supposition or stale dialogue re-creation.
In addition to getting re-acquainted with Erik’s family, we meet new key people in his life. We meet his son, who is sweet and precocious and is too young to express his grief at being taken far away from the only life, country and culture he’s ever known. The challenges of culture shock when adopting a child from a foreign country (and the bureaucracy that goes with it can almost be felt by the reader; I can only imagine what it felt like going through it at the time. And so many people were instrumental in building this relationship – on both sides of the world.
We also meet other disabled people – from sheltered blind children who learn they were capable of doing more than they thought possible, to veterans who struggled through their own mental and physical barriers to climb mountains, to doctors and adventurers and entrepreneurs and bureaucrats and kayaking guides… Erik’s books are always about people; I never once came away with the idea that Erik was this big hot shot who’s done all these cool things, but he had others with him every step of the way.

A Few Too Many Rabbit Trails

Unlike “Touch the Top of the World”, “No barriers” is a long book with many components to it. We travel up a Tibetan mountain with blind teenagers, learn about the BrainPort (a nifty piece of technology that produces visual information on the wearer’s tongue, laugh and cry at the journey of creating a new family, experience the merger between two nonprofits and the pitfalls along the way… it’s all useful and important, but at times I just wanted to get back to Erik’s journeys as an adventurer – climbing mountains, kayaking rivers – or reading more about his family. “Touch the Top” was a much tighter and more cohesive read, but I do understand why all these components were included, to describe a journey of peaks and valleys, of falling down and getting back up again.

Seeing the Forest for the Trees

One of the most profound experiences in the book is not when Erik kayaks the Grand Canyon (though that experience is well-described and riveting), but when he trains and takes a small group of blind Tibetan teenagers and their guides to Tibet’s tallest mountain. Erik is put in touch with Sabriye Tenberken, a blind German social worker who founded Braille Without Borders, a school and training center for the blind of Tibet. Eventually they decide that, both as an educational experience for the teenagers and as a way to break down barriers placed on them by Tibetan society, a mountain climbing trip is in order. Erik is a goal setter – he has a plan, and he is going to achieve it, making adjustments along the route but with the understanding that achieving the goal (in this case, climbing the mountain) is the most desirable end result. But when threatening weather adds further danger to this trek, Erik and Sabriye have vastly different opinions on whether or not to proceed.

Sabriye, affter thoughtful consideration, tells Erik that she has taken what he’s told her to heart, that she needs to respect the mountains and their beauty. She tells him bluntly but kindly that she’s noticed the sound of the wind in the trees, the feel of the glaciers, the stillness of the air. She has done what he’s asked, to appreciate the mountains for all that they offer, but it’s his turn to do what she’s asked and respect their people enough to acknowledge that they’ve already done more than they could’ve ever imagined, and now it’s time to keep them safe.

I read this book months ago, and Sabriye’s idea (though paraphrased here) has never left me. Goals are important, but sometimes we focus so much on the end result that we miss the little things along the way.

Conclusion

This book is well worth your time – at a sprawling 480 print pages and more than 19 recorded hours, it will take a lot of it. It’s profound and moving in ways I didn’t expect. That being said, some passages could have been shortened for a more cohesive read.

4/5 stars.

In the Shadows of Gaslights

12 Saturday Aug 2017

Posted by blindbeader in Uncategorized

≈ 9 Comments

Tags

abuse, dignity, emotional abuse, family dynamics, fear, flashbacks, gaslighting, relationships, toxic, trauma

A package was being prepared for shipping. Payment arrangements had been made. By all accounts, an ordinary transaction. But my head pounded, my hands shook, and I just knew I was going to be sick. Before I knew it, I was trying not to vomit into a garbage can. I had to get out, and get out immediately. It wasn’t only the cold I’d been nursing for nearly a week that caused these symptoms; it was the residual affects of gaslighting that reard their ugly heads.

What IS Gaslighting?

Gaslighting can best be described as a manipulative and emotionally abusive tactic that erodes your ability to be confident in your decisions and perception of reality. In an accessible and readable article, LonerWof outlines how gaslighting can be spotted in family, marital or professional dynamics. My own experience, it sadly appears, is far from unique. Because of the personal nature of the stories below, names have been changed.

 

All in the Family

 

We learn many behaviors from our family of origin. When Kendra described to me her extended family dynamic, it sounded like a psychological thriller. One family member was accused of abusing women and children, denied it, and then, to hurt his partner, confessed to the behaviors he’d spent years denying. Children witnessed gaslighting behavior by a parent or grandparent, where some children were favored and others were “unspeakably abused” and made to believe they were imagining it. To protect his family from the toxic family dynamic – and with scars and a possibly undiagnosed mental illness of his own, Kendra’s father refused to permit family members to disclose to others where he and his immediate family (Kendra and her siblings) lived. Kendra believes that, because of what she saw growing up, she was able at a young age to get out of an emotionally abusive relationship before it “damaged her in the long-term.” After the breakup, before the age of social media, her boyfriend wrote her a letter that she describes as a textbook check list for manipulative gaslighting.”

But gaslighting is not always intentional. Sometimes, denial can lead to gaslighting behaviour. Rachel lives with a complicated visual impairment which went undiagnosed for years. Her family tends to dismiss her inability to see things, telling her to try harder, that – because an ophthalmologist didn’t diagnose her visual impairment – it doesn’t exist. Rachel finds herself in a complicated place, because relatives and in-laws don’t think she’s “that” blind, and yet she is the only one who sees through her eyes and processes her visual world, and she knows what she can and cannot see.

 

I love You… but You’re Wrong!

 

All relationships have conflict, miscommunication, and differing viewpoints. But when clearly-stated boundaries are ignored or deflected in ways to make one party feel unstable or irrational, that is gaslighting.

Sarah described to me a relationship she was in several years ago, where her concerns were glossed over or turned back on her. Boundaries she wanted to set were “evidence” of her mental instability, and she was a “psycho who needed to be hospitalized.” Any behaviors he did that hurt her, he denied doing them at all. When she wanted a short break from him to work things out, he tried to take her guns (used for target shooting) away “for her protection.” She began to doubt herself all the time, wondering if her feelings and concerns and personal boundaries were valid, or if her partner was right, that she was unstable and “psycho” as he claimed.

 

“You should Be Glad You have a Job Here!”

My recent experience above stemmed from a job I held years ago. I was belittled and bullied, and whenever I tried to raise legitimate concerns, I was told I needed to accept my colleagues as they were, and besides I had things I needed to work on. When I wasn’t being as productive as I knew I could be and was using substandard technology, my concerns were swept under the rug – until one of my colleagues couldn’t take my “unreadable paperwork” anymore – because replacing any equipment would’ve been giving me “special treatment.” Any time I mentioned anything about the work environment, I was told that I should be glad I had a job at all. The last straw was when the braille display unit I used for work needed repairs, and because it was purchased for me years ago (for work purposes) my employer didn’t believe it was their job to pay for the manufacturer to fix it. I ended up having to rely on a braille display from a wonderful generous friend while mine was out for repairs, but the bullying and gaslighting never stopped. I questioned my own perceptions – was I asking too much? Was I being a special snowflake? Was my colleagues’ and managers’ treatment of me in response to something I was doing, or not doing? Were they right, that I should be grateful I had a job at all in a down economy? Only one person at that workplace told me, in an unguarded moment, that they saw what I was going through, that they recognized it, that yes, it was, in fact, as bad as I thought.

Recently, that same braille display quit working. My work environment has changed drastically and is so supportive I can’t even begin to describe it. But so many circumstances were the same. I was borrowing that same display from that same wonderful generous friend, the box with my broken display was being prepped for shipping, and I was making phone calls to figure out how to get the repairs compensated. While support came from all sides – from the idea that I shouldn’t be the one to jump through hoops to simply be able to do my job, to modification of job duties if needed – I couldn’t escape the flashback. I felt like I was back in that office years ago, at the same desk, with the same people stabbing me in the back. Those who actually currently surrounded me were lifting me up and holding me together, and yet all I could hear and feel and see was my experience of years ago, being crushed underfoot, smothered by unreasonably unmet expectations.

In a room full of people, I was alone.

I was staring into the flames of the gaslights.

 

What if YOU See the Gaslights?

 

Gaslighting is real. It is not a figment of your imagination. Many who have shared their stories with me have told me that if they had known of its existance, they may have been able to put their fears and concerns into words, and may have removed themselves from the situation sooner.

Sarah has found that spending time with people who take her concerns seriously really helps heal the wounds that her gaslighting experience left on her. She thinks it’s essential to surround yourself with solid reliable people, and to remember that your alleged faulty memory or irrationality would be pointed out by more than just one person (or group of interconnected people), and never consistently in a way to manipulate a situation in someone else’s favor.

Rachel finds, for her, that it’s important to love her family, but to also recognize and embrace her own voice. She describes her family as “voices that I love,” but they do not live her life, and they are not always right, and she thinks that’s okay.

As for me, I don’t think it’s enough to keep my head down and just keep on plugging along. My plan is to seek out both social and professional connections to help make sense of all of this. When one questions their own reality, it’s hard to put it into concrete words. But I will try. I will hold my head high, surround myself with people who support me (singed gaslit eyebrows and all) and truly learn to trust myself again.

If you are reading this and have experienced gaslighting, please know that you are not alone. There is truth in what you are going through, and it is not inescapable. You are not alone. You are not wrong. How you experience the world matters, and no one has the right to take that away from you.

“Um… Dad? I got a Tattoo…”

05 Saturday Aug 2017

Posted by blindbeader in blindness

≈ 3 Comments

Tags

autonomy, dignity, disability, Jenny, personal, tattoos

I recently celebrated a birthday. I chose to celebrate it by attending a stellar performance of “Phantom of the Opera” with my husband and a good friend, silencing my phone’s frequent ringtones heralding “HAPPY BIRTHDAY!” messages from all corners of the technological world, and capping it off with a personal-best-speed 6-mile run. In the midst of all this, I received several birthday wishes and instruction from my father, that I could get ANYTHING I wanted…. except a tattoo.
That’s great!
because… I already have one tattoo… and I don’t want any more.
When I told my father this, he seemed surprised. “How did that happen?” he texted me.
Well, in the manner of all things sarcastic, I texted back that I consulted a tattoo artist, had a design drawn, sat in the chair, and got it done.
Isn’t that how all tattoos “happen”?
I never intended to keep my tattoo a secret. In fact, my dad reads my blog; I mentioned it here. But for people who’ve just met me or don’t read my blog or missed the whole half-a-sentence mention my tattoo got six months ago… here’s some details!
I chose to get it where it can be concealed in the workplace and shown off in a more casual summer atmosphere. Originally I wanted mine on my shoulder blade, but many friends told me in general tattoo-based conversations about their shoulder pain horror stories, so I nixed that idea. At the time I was working in business-to-business sales, and many colleagues had tattoos. I asked a couple of them where they got theirs done, called a couple of shops, and went in for one consultation.
I know many people who have TONS of tattoos; others are terrified of needles. I fall much closer to the “terrified of needles” camp, so I was kind of scared to get this done. Several friends (blind friends in particular) asked me about my experience getting a first tattoo, if it hurt, what my artist was like, how I knew things would be OK… the whole bit. I had to think a lot about it, because I lucked out; my one consultation was so easy and fluid that I never even considered getting another.
When choosing a tattoo artist, you’re effectively finding a doctor, a therapist and a graphic designer all in one. It’s an intensely intimate process and both artist and “canvas” need to be able to effectively communicate, otherwise…. not-cool things could happen… and they’re pretty permanent!
When I walked in for my consultation on an unseasonably warm Friday in January, I had no idea what I would be getting myself in for. The entire staff was warm and welcoming, and Jessie (the artist who would design and place my tattoo) and I sat and chatted about what I wanted, where, and how she could best describe her design for me as a blind customer. I’m pretty no-muss-no-fuss, and I wanted something I would be happy with but that wouldn’t be too elaborate (see above comments about needles). It was one of the easiest service-provider/customer conversations I’ve ever had in my life, and I knew I’d found the right tattoo artist. Money was pretty tight at that time, and so I told Jessie I would give her a call once things picked up and I could justify the expense, but I definitely wanted the tattoo. Not three weeks later I got my current job offer, paid my deposit, and asked for Ben’s thoughts on some drawings. He wanted his own tattoo, but different from mine, and on the first concept drawings Jessie hit the ball out of the park for both of us.
The designs had been chosen, I left Jenny at home, and I made my way back to the tattoo shop. I don’t know what I expected (some cubicle-style room with a curtain across it? Dingy dark corners where tattoos are applied in secret?) but the open airy room I entered with huge windows along the back wall definitely wasn’t it. While I was nervous about getting the tattoo, Jessie was great about putting me at ease. I even got to put on gloves and feel the tattoo gun (without needles) as it vibrated, and touch the needles in their sterile packaging. As I sat in the chair, Jessie went to work, describing everything she was doing, giving me fair warning if she was using a different needle (yes, they feel different), offering me a break if I needed. We talked about other things, too, like good food and dogs and work and business ownership… life, really. The time flew by, and while the tattoo application hurt a little, it really wasn’t that bad. Just over an hour after we got started, a bandage was placed over my freshly-tattooed skin, and it was done.
I remember telling Jessie at the time that I seriously don’t think anyone has ever just “gotten” communicating with a blind person so well. She admitted to feeling slightly uncertain about how much information to give, but she knew that everything she did would have to be described. One never would have guessed that I was her first blind client, though not her first with a disability (she mentioned having done piercings and tattoos for Deaf clients). Not only did I get a cool-looking tattoo, I got the seamless experience – the true luxury – of not having to explain anything at all about blindness or accommodations or humanity and disability. Remember when I wrote about a tattoo artist being like a doctor, a therapist and a graphic designer rolled into one? I hit the jackpot.
So, if you’re in Edmonton, hit up Jessie at Shambhala Tattoo. Tell her Jenny sent you… because, in a way, she did.

 

My tattoo of Jenny’s paw print with her name inside it

 

 

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